Okay so as I have said before we appreciate everyones' emails, comments, phone calls, etc. Tonight I wanted to post two post from our CHARGEr friends blogs that are asking for prayers for Caleb.
Thank you all.
From Mighty Max's website:
prayers for caleb
Our friend, Caleb, really needs your prayers. He is having a very difficult time and is now facing open heart surgery in the coming weeks. While this is desperately needed (doctors believe he may be in early stage of heart failure), his body is not at its strongest and therefore recovery will be much more complicated.Please pray for comfort and healing for Caleb and peace and wisdom for the parents and doctors. Thank you everyone. We are very worried about our amazing lil' friend.
Posted by Maxwell and Amy at 12:16 AM
From Eva Nicole Masionis' website:
Sending prayers to heaven!!Date: 6/10/2007
Today we are at my parents house and my mom came home with a balloon so the kids could send it to heaven to ask for more prayers for sweet Caleb. What a sweet thing to do!!
Hugs and Kisses,Eva Masionis and Family
Please note on Eva's website there is also a video of the children releasing the balloon please visit her site by following the link with Eva's name above to see the video.
God Bless Caleb!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
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13 comments:
How wonderful that you have such a wide network of caring friends - it's amazing to witness the support they offer to all of you.
Love and prayer-
Chris XOXO
AWW you are always so welcome, I love all the little CHARGErs I "meet" and feel like I know them so well threw their sites. God bless you all!!
Hugs,
Crystal and Eva
Just found out about your blog from Dr. Frangiskakis. Wanted to send thoughts and prayers from Pittsburgh.
Jackie
(Resident from Children's in Pittsburgh)
Happy 11 month Birthday my Little Bubber. Your Daddy is so proud of you! Although I have been only away from you for not even 24 hours, I miss you so much!
Brian, you're going to make me cry!!!
I hope Bubber is having a better day today...
God Bless & Lotsa Love (that adds a little extra oomph from above as that was my pap-pap's saying)...
Jess
Happy 11 months Caleb!! You have been such an inspiration and joy to so many people!!!
Love to all-
Chris
just getting ready to go to sleep, but wanted to say hello. Thinking about you guys and hoping today was a good day for Caleb.
Much love and prayers for you guys!!
Becky
Sending lots of love and prayers from Seattle....
the Mellos
just wanted you to know i'm thinking about you all...
god bless & lotsa love
Praying that Caleb has had a good week and thinking of you all the time...
Corrie
We are so eager to hear how you are doing...hoping that no news is good news.
Much love and prayers are being sent your way....
Amy and Mighty Max
Just checking in to say hi!! Love and prayers coming your way in huge quantities!!
Love-
Chris XOXO
We are still thinking about you, I hope you are still moving forward. Slow is better then none.
Hugs,
Crystal and Eva
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