The meeting was held today and the docs pretty much said that Caleb's heart may be in the early stage of heart failure. Therefore, they believe the next step needs to be open heart surgery to fix his ASD (his hole) and his tri-atriatum (the membrane that is causing a division in is his heart that is making the heart look like it has three atriums). They believe this has to be done to prevent any more damage to the lungs, help him in the lung run for the Thymus transplant, and to help him recover quicker from any possible future infections.
Of course with any open heart their are concerns:
- He will be on bypass and that does cause extra fluid in the lungs after transplant. This is a concern because Caleb already has some lung issues going on. He will probably not be the typical post op patient due to the lung issue. They said he could possibly go back on the oscillator again due to the fluid.
- Caleb has fungus in his lungs. So they want him to complete his full course of antifungal meds before going to the OR. The concern with this is they use a piece of foreign material to close the hole. If fungus attaches to the material it would be a very serious situation and life threatening.
- Caleb has other things that are going on right now that are not optimal for surgery: nutrition, elevated liver enzymes, etc. So we are trying to optimize these situations for the surgery also.
They did say today if the course of antifungal meds were done today they would have him in the OR as soon as they could. They are hoping that he can go to the OR within the next 2-3 weeks. I am leaving some things out but the main thing they stated today is that we are not starting out in 'optimal' conditions so we are not sure what his recovery will be like for the open heart.
So as always we would appreciate everyone's continual prayers for our Little Bubber.
God Bless Caleb!!