I am posting this update for Sarah to let you all know that Caleb's open heart surgery has been rescheduled for tomorrow afternoon and it is very high risk surgery above and beyond the normal risks that exist with a surgery of this type (especially in someone so small). Caleb's lipase level has not regulated yet, nor have the other issues that have been going on with his liver and pancreas, however the doctors feel that his lungs are as stable as they have been in quite some time and therefore they need to move forward with the heart surgery now. His parents and families are both very nervous right now and they can all use your prayers as well as your prayers for Caleb's health and a successful surgery.
Please also pray for safe travels for Brian, Bernie Byrum (Sarah's Dad), and Ron and Jean Hlebiczki (Brian's parents) as they are on the road right now on their way to Duke to be with Sarah and Linda Byrum (Sarah's mom) to support Bubber.
God Bless Caleb and God Bless Sarah and Brian and their amazing families. I have to let you all know, and I am sure you will agree, that I have never seen people handle such a difficult situation with such grace, faith, love, and an amazing sense of family. The Byrum's and Hlebiczki's amaze me so and are such examples to all!! Thank you for letting us bear witness and be a part of your amazing family!!
Keep fighting Bubber, I am so sorry you have to keep going through this, but you are so amazing!!! WE LOVE YOU SO MUCH!!! God Bless Caleb!!
-Jen Straub (Aunt Jen)
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
19 comments:
Love, prayers and bear hugs coming your way as always.
Much love-
Chris XOXO
Caleb is an amazing little fighter, but he couldn't do it without all the support from his loved ones. You're an incredible family, stay strong and I'll continue to keep Caleb in my thoughts and prayers especially for tomorrows surgery.
God Bless Caleb!
Love, Niki
We are alwaying praying for you sweet Caleb!!! God bless you and your sweet heart. You will be on Eva's site tomorrow looking for more prayers for you.
God Bless,
Crystal and Eva
keep fighting caleb my prayers are with all of you everyday continue to stay strong sara and brian god bless all of you .
in my thoughts and prayers always love and hugs
alana
Dear Brian and Sarah,
We will all be praying for you from the office tomorrow, along with everyone else I know who I have told about your amazing journey thus far. God be with your precious little one throughout the surgery and recovery, and may God keep you strong...you guys are incredible!!As always...ALL OUR LOVE AND PRAYERS!!
Becky and Bobby D.
ps. Thanks to your Aunt Jen for the update.
Hlebiczki's,
You know how much I love you guys...I'll be thinking about you all day tomorrow, although I know my sister (Aunt Jen) will keep me posted as soon as she hears from you.
God Bless & Lotsa Love,
Aunt Jess
Thank you for the update...we are holding you close in our thoughts and prayers.
This is an incredibly difficult time...we know. Caleb is now in the hands of very experienced doctors and most importantly our Father. May God bless the doctors with wisdom and grace and Caleb with healing and comfort.
Please keep us posted.
Love to all of you...
Amy and Mighty Max
I know that Caleb has an amazingly strong bunch of family and friends supporting him and I know that you will all make it through these difficult times together! My thoughts are always with you all.
With love from Pittsburgh, your medical student Jessica.
I send you prayers and support from those who you don't know but hold you in our hearts.
We will keep Caleb in our thoughts tomorrow.
Hugs,
Sarah, Jeremy, and Evan Storrs
You all are in my thoughts and prayers. I will be thinking of you all day and will try and come by before I head into work tomorrow night. I hope to get to see you all and give you a big hug! I have missed you guys!
Kristin, RN (5100)
Dear Brian and Sarah and Caleb,
We are going to be praying extra hard tomorrow. I know it will be a long, scary day. Please know there are so many who are with you in spirit and praying for you all.
"Have no anxiety at all, but in everything, by prayer and petition, with thanksgiving, make your requests known to God" Philipians 4:6
Give Caleb an extra kiss on his head from his CHARGE friends and tell him there are lots of prayers going up for him.
God Bless,
Corrie
thanks for updating us all
Hello.. Just checking in and wanted to let you know that your family is in our thoughts and our prayers and our conversations..yes your family has become our family thru the lives of the little ones who have been in the PICU together. I will be looking forward to reading the next update or hearing form Linda later this evening. We hope that Brian and the other family members had a safe trip in to Durham. Love You and miss you. Hugs and Angel Kisses from Tammy Prince (Lane's mamaw)
Caleb and Family,
Please know that we, in Pittsburgh, continue to pull for you to get over this hurdle tomorrow, just like you did when you continually amazed us here.
Dr. Susan
Dear Caleb and family,
You are in my thoughts now more than ever. Your family is a constant reminder of incredible strength, grace, courage, and hope of which I feel humbled to be a witness to. We appreciate you continuing to find the time to update this blog, though I'm sure you are all exhausted. You are very missed in Pittsburgh and are thought of more than you'll ever know. Thank you for being such a wonderful example for all of us.
Sarah
(9th Floor RN at CHP)
Just heard that the surgery went well - I can't imagine how anxious you and Brian are to get in there and see sweet Caleb.
All my love-
Chris
I'm so glad that the surgery went well...I'll keep praying hard as the next 48 hours are still critical.
I love you guys and I'm glad you've gotten over one hurdle.
Love,
Aunt Jess
I just talked to my sister (Aunt Jen) who spoke to Sarah this morning and wanted to let the other people who care about Caleb so much know that Caleb is doing very well and has been taken off the ventilator and was extubated. There are other things as well, but I'm not real good with all of the medical lingo, so I'll just say that all signs are pointing to positive right now...and I am thrilled to hear it.
Keep fighting Bubber...you're amazing us all...we love you!!!
Aunt Jess
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