Well the results of the biopsy are back and it shows signs of a blockage, however, the other test (MRCP) they did did not visually show a blockage. In addition, his pancreatic enzyme levels came down greatly and his billirubin came down also slightly. We are hoping those continue to trend downwards. The Critical Care team, GI docs, and General Surgery are all in debate if the removal off the gall bladder is needed at this time. If the levels continue to trend downwards tomorrow they are willing to 'wait and see' how his levels continue to trend and not push it as an emergent case. So we are praying they continue to trend towards towards normal range.
In addition, Caleb's EEG (brain wave activity) test came back and there is no signs of seizure activity.
He has been sleeping off and on the last 24 hours which is much needed due to the lack of sleep and withdraw. So we are hoping that he will soon get through that but it will take awhile as he is still on morphine, quanidine, methadone, and valum to help him withdraw. The morphine will be the first drug they try to wean once they feel his withdrawl is getting better. We are hoping that his abnormal eye activity is related to the withdrawl also.
As far as updates that is all I have for now, but he is STABLE and STABLE is great!!!
God Bless you all and thank you for your prayers.
Kiss your children often-don't take anything for granted. Cherish the smiles, the laughs, the funny faces, the eyes opening, cherish every little thing. Don't take anything for granted!!!
God Bless Caleb!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
6 comments:
Thank you sooooo much for the update Sarah...and YAY for Caleb in making "some" progress. STABLE is a very, very, very, very positive word in my book...always love that word! :) Thinking of you lots my friend...
Amy and Max
I am so happy to hear the news you got. I am alwaysthinking about him and I tell everyone I know about him, even my mom has been asking about sweet Caleb.
God Bless you all!!
Crystal and Eva
God Bless Caleb indeed!!! As well as all of his family and friends!!! Your wise words are so true - you are truly an example for all of us Sadie.
Much love to all of you-
Chris XOXO
It was great to hear some good news for Caleb..What a strong fighter he has proven to be. Bless you and Brian too, Sarah, for being strong parents. I'll keep praying for your strength, along for Caleb.
Thank you for the update..
love, Becky
Keep it up Caleb!!
Love,
Corrie
Hey Hlebiczki's & Byrum's...just wanted to let you know I'm thinking about you.
Love you!
Jess
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