Well all, not a lot of new developments. BUT Caleb did make eye contact today with the resident and with me but then his eyes kind've went funky again. His eye movements this morning looked a little more fluid, but he still tends to look up most of the time. He has been off the morphine since 8 am this morning and (knock on wood) hasn't seemed like he needs more. They have it on standby if needed. But we are hoping once they continue to ween his withdrawal meds that his eye movements will continually get better. They also did a head Catscan today to check his ventricles to see if that in any way is related to the eye movements. This was done to check to see if the shunt is draining the ventricles properly. The ventricles do look a little bit bigger than normal, but his are big. . . so that didn't seem too surprising. The brain itself seemed a little smaller than before but they said a lot of kiddos who get as sick as Caleb has been tend to have this happen. They are not sure at this time how and if at all this will effect Caleb in any way. The old 'wait and see' game will let us know. In addition, Caleb was able to get rid of the extra fluid off of his body and out of his lungs. However, the 'fungus' is still there.
We have a meeting tomorrow with Cardiology, Allergy and Immunology, and the Critical Care Team, to get everyone on the same page and to see what the plan of action is in regards to the MRI and Cath I discussed in yesterday's post.
Finally, Brian was able to come down today, thanks to Jeff Petzack, to be here for the weekend. We have missed him very much!!! Thanks again Jeff we appreciate it so much!!!!!!!!!!!
Again, thank you all so much for your continual prayers. We appreciate it sooooo much!!!!
I will post tomorrow night and let you know what happens in the meeting and see what the plan is in regards to checking Caleb's heart, brain, and other related issues.
God Bless Caleb!!
8 comments:
Hello Sarah,
seems like Caleb's day was better today..So happy to hear so, and I'm very happy for you that Brian was able to join you today-you guys need each other through this.
As always, we will continue to pray.
God bless you all!!
Love, Bobby and Becky D.
As always we are thinking about you, I am always praying and asking other to pray also. He is on Eva's site again today.
I am so glad daddy with there for Caleb, you have a great friend there.
Hugs,
Crystal and Eva
I am so happy to hear that things are a little better each day. I am so glad that Brian got to come down and be with you all. I will be back from vacation on the 18th so I hope to see you on 5100 and not have to walk to the PICU (but you know I would)!
Love, Kristin, RN
How great that Brian is there now - I know that's good for all of you!! Hope you get some more positive signals at today's meeting!!
Much love-
Chris XOXO
Brian, give your amazing wife and your beautiful son an extra hug & kiss for me!!!
I'll be thinking about you guys today and anxious to hear how the meeting goes.
God Bless & Lotsa Love -
Jess
Go Bubber Go!!!! Keep gighting!! We love you so much and we think about you all the time. I am so glad that Brian is back with you again! Tell him to pass on the hug Haleigh and I gave him last weekend!! We love you all and miss you so much!!! God Bless Caleb!!!
Love-
Aunt Jen, Uncle Andy, and Haleigh
So glad to hear your day was better! We'll pray that you get some answers in your meeting today. It's always nice when you can get everyone together and on the same page.
I'm sure Mommy and Caleb are so happy to have Daddy there! Thank you so much for keeping us updated.
Love from MO,
Corrie
Thinking of you friends and praying for peace, comfort and strength during this very challenging time.
Love, Amy and Max
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