Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"

Friday, August 19, 2011

A Little Scare

So Tuesday morning Caybay started acting 'off' again. Once again this is so hard when you know something is bothering him and he cannot communicate his emotions. We watched him closely and he was getting more and more tired and by Wednesday afternoon, his pediatrician said to take him to the local ER. We weren't at the local ER long before they called Children's for Transport, this time it was an ambulance and not a helicopter. By the time we got to Children's, Caleb was getting more and more lethargic and not waking up and when he was up he was dry heaving. So after five sticks, they finally started an IV and with two very large fluid boluses he wasn't perking up. They then decided to do some xrays of his head to check his shunt and his belly to check his intestines. All looked good. But, he still wasn't waking up which yielded and admission. We were hoping we would never see the inside of the new Children's Hospital patient rooms, but we did. WOW they were gorgeous compared to what we lived in to for a year and a half at the old hospital. They had bathrooms in them with showers! Wow that would have been nice to have that when we were there! I am so happy they have that for families now! So when we got up to the room Caybay perked up and we got to see some of our old friends, nurses and docs when we were in his room! He stayed up for a bit but quickly went to bed! By the next morning I was hoping he would be more perky, but not so much. I asked for some more nausea meds as we were hoping with that maybe we could get him to eat and was hoping that would really perk him up. It slowly did, and as more and more labs came back normal, the talk of him going him if we felt comfortable with that, was being discussed. We know the docs so well and I love that since they know us and feel confident that we know signs of when to bring him back if need be, they gave us the option to bring him home. So he is home, still pale but acting more and more like himself. We aren't really sure what caused it. We are thinking a virus. It is so hard when you have a child that can't communicate and has such an extensive medical history. But he is relaxing now and hopefully continuing on the mend. Thank you all for your prayers!

God Bless you all!!

God Bless Caleb and Camryn!!

Friday, August 12, 2011


Okay sorry for the delay. Two kiddos keeps you very busy! So I apologize. I would like to make a note for those of you that don't know. Caleb does have a facebook page, where I post quick updates very often. If you want to follow that way, do a search for 'Caleb Hlebiczki is a Fighter'.

So on to the updates.

The beach trip went well. Caleb unfortunately waited until the last day to try the beach out. We sat right at the water's edge and he loved it. He played in the sand, saw fish, and even enjoyed some of the tiny waves (since we were so far out). We had a great time. The weather was a lot better this year and that was a definite bonus also.

Miracle League was fantastic! When we showed up they told us Caybay was going to be second at bat. BUT to all of our surprise he was first. He didn't want to wear the helmet at all. But with Brian's help, as Bri was his buddy, Caleb batted and was the first to score. I loved the game. It was so great to see these kids have this opportunity. They are still trying to raise money for the local Miracle League Field, and are getting there. I just heard today that someone donated the concession stand for the field. People are amazing.

Pics of the beach trip and some videos are coming soon. I have the pics uploaded just have to figure out how to convert the video.

Caleb also just celebrated his 5th birthday. Yes my baby is FIVE. Unfortunately, right around his birthday we noticed Caleb acting very very tired. He actually slept through his bday party, definitely not typical Caleb behavior. He did end up having a bug that he shared with his sister, but while doing some bloodwork they did realize they think he may have thyroid disease. So this is probably the cause of him being a bit more tired than normal. Thirty percent of the kiddos who received the same transplant Caleb had did get Thyroid Disease. We see the endocrinologists on the 29th to see what is needed as far as meds.

He is doing great with his glasses. He is a pro at taking them off and putting them on. Who would have thought?!?!

Well I am going to try to figure out how to get the bday video and miracle league videos uploaded to the computer. So check back soon!

God Bless you all!!

God Bless Caleb and Camryn!!