Yep, you read that right we are in a regular room!!! Quick thank you to Aunt Jen to send out updates-you have helped me a lot keeping everyone informed.
Bubber's electrolytes are getting out of wack again though, but they are wondering if that is related to his Tcells/gut issues due to his Immunosuppression.
He has been laughing a lot. Which you have no idea how much that melts our hearts. He is so darn cute!!!
His longer incision where they opened his chest doesn't look bad but the one where the chest tube was is a little red. So we are putting Bactroban on it and waiting on the Infectious Disease group to come and look at it and tell us what they think.
They did an echocardiogram before he left the PICU on Friday and they said there is a little fluid around the heart but nothing to be concerned about. They will do another echo in a couple days.
His white blood cell count is up but they are not really sure why. They are going to check it again tomorrow and see how it is.
All I have to say is what an amazing little boy we have. He is so darn cute and so darn strong. Keep up the good work Bubber. AND as promised I have a video! Enjoy!
God Bless Caleb!!
15 comments:
Sarah and Brian (and Bubber of course), I truly am amazed. His strength throughout this ordeal is nothing short of miraculous...seriously. I was so worried with him going into heart surgery and now look at him...WOW! And already to a regular room...HOLY MOLY!!! Truly incredible. Please keep us posted. I know this is still a very critical time with the recovery and waiting for the transplant. But wow, the power of prayer has certainly kicked in BIG time for your special guy!
Love to all of you!
Amy and Mighty Max
Hi Sarah,
The pictures and video were fantastic..How adorable he is!! What a tough little guy, to be in a regular room already, it's unbelievable. I know his parents strength is rubbing off on him. I can't believe how fast he is growing, too. He looks like a 'little man' already. Thanks for the update--CHEERS FOR YOUR LITTLE BUBBER!~!~
as always...love and prayers,
Becky and Bobby D.
Way to go Caleb!! What a beautiful video that is - watching that progression from sedation to smiles and coos had tears streaming down....what a precious little boy (he doesn't look so little!!) surrounded by such love and strength!! Keep up the baby steps Bubber!!
Much love to all-
Chris XOXO
I am so happy to see him smiling and laughing at his mommy...way to go Bubber! :) Your mommy is an amazing & strong woman...you are one lucky guy. She's also pretty darn funny...so keep laughing at her...trust me, you'll be laughing for the rest of your long long life! :)
I love you all...
God Bless & Lotsa Love,
Aunt Jess
Thank you, thank you, thank you!!!!!! Haleigh just reached up and kissed the computer screen, seriously!!!! You just made our day!! So good to see him and to hear him!!! What a gift!! He is so amazing and so are you and Brian!!! I know how scared you both were leading up to his heart surgery, but you never let that show to Bubber. You just showed him strength and love, no wonder this kid is fighting so hard!!! God Bless you all. We love you and miss you so much!! We will continue to pray for his healing and strength!!! Go Bubber, go!!! God Bless Caleb!!!
Love-
Aunt Jen
Sarah, Brian, and Caleb...you are a truly amazing family and we are so happy to hear that you are in a regular room! The video is fantastic and he is soooooo sweet! We will continue to pray for a healthy recovery and for peace for all of you!
Love,
Matt, Amy, Ben, and Brandon D'Accione
Sarah and Brian:
He is absolutely BEAUTIFUL!! He looks like he is getting so big and a lot of hair too!! Thanks for the video it was GREAT! We will continue to keep you guys in our thoughts and prayers daily!
Do you have a new address for your new room???
Love Jenny, Darin and Keira
WOW what a blessing, I love how happy and healthy he looks, I can't believe how much his hair has growen and he looks so long in your arms.
I know alot of how he is doing is because of his wonderful parents, I can see the love he gets everyday from you both and I know he loves you both so much.
The video was wonderful and I feel so blessed to have been able to see it.
What a wonderful little boy, god has blessed you all and of course my family and I will continue to pray for Caleb everyday!!
Hugs and prayers,
Crystal and Eva
Brian Sarah and Caleb, That video made my morning!! He looks great!! Another obstacle in the course has ben overcome although still many more lie ahead. Hopefully you guys are staying tuff and I bet being able to be with him now will make it easier. We all miss you all and talk about you all the time at CHP. You're doing GREAT Caleb keep fighting! Holly RN
Such a treat to be able to watch Caleb's precious video. Thank You! You can see how happy he is to have his mommy and daddy with him. He looks great!
We'll keep praying all these other things sort themselves out and that it's smooth sailing for his recovery here on out.
Brian and Sarah, you guys look great too. You are doing an awesome job of holding up through all of this. We're praying for you too.
So glad you're all together in a regular room again. Thanks for keeping us posted.
Love from MO,
Corrie
Sarah, Brian, and Caleb,
Caleb looks amazing! I can tell by the look on his face that heart surgery has helped him so much. What a super strong boy--already down on the floor! Amazing!! We will continue to keep Caleb (and his parents) in our prayers.
Hugs,
Sarah, Jeremy, and Evan
Gram and Pap Byrum
The shows the miraculous strength of this family. United they seem to conquer anything. Please continue to keep the three of them in your prayers. God bless everyone and thank you,
Happy 4th of July Caleb!!!
God Bless & LOTSA Love,
Aunt Jess
yea!! i am so glad to hear of your new room! your video was so great, we all loved it so much. he so sweet when he laughs! we will keep praying for all of you!!
christie foppiano, brian, lela, charlie and piper
Wow! Wow! WOW!!!! We are just so awestruck at the strength of little Caleb. He can't even be called little anymore. He's grown so much. He is an inspriation to us all. He has the most amazing family and network of friends who love him dearly, and keep you all lifted up so high. We will continue to pray for strength and healing for you all. We love you Hlebiczki family! WE LOVE YOU!!!
-The SC Fords xoxo
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