Caleb Paul Hlebiczki: Short update

Friday, December 30, 2011

Short update

Hi all! So Caleb seems tired today, completely understandable. He had an early and tough day yesterday. Brian surprised him today with two new fish for his fish tank, because he was so brave yesterday.
One of our newer goals, along with communication, is self help skills, (dressing, brushing teeth, bathroom etc.) and I am so proud of Caleb that he just put on his own pants. Great job little man. We are so proud of you!

God Bless you all!!

God Bless Caleb and Camryn!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.