Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeoerge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story.
God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
Tuesday, December 13, 2011
New Eye Patch
Well, Caleb's other eye patch was breaking down his skin. So we are trying this one that fits over his glasses. He didn't seem to mind it too much.
A newer Fund, to aid in paying Caleb's medical bills, has just been set up for checks to be written and mailed to the Caleb Hlebiczki Medical Fund. If you would like to mail a check to the fund, please contact me at sarah_hlebiczki@comcast.net and I will send you the address and tax i.d. information! Thanks so much for your donations. They are helping with the HUGE pile of medical bills!
Caleb Hlebiczki Medical Fund-Direct Deposit
Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.
My Thirty-One Page
I recently have started selling Thirty-One to help pay Caleb's medical bills. This allows me to stay home with the kids but still try to make money to pay off the huge pile of medical bills. If any of you would like to view my Thirty-One stuff please visit my page at www.mythirtyone.com/SarahHlebiczki and browse all the great stuff. The product line is really versatile and appeals to a lot of people. Again, thank you for your support!
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