Short update

Hi all! So Caleb seems tired today, completely understandable. He had an early and tough day yesterday. Brian surprised him today with two new fish for his fish tank, because he was so brave yesterday.
One of our newer goals, along with communication, is self help skills, (dressing, brushing teeth, bathroom etc.) and I am so proud of Caleb that he just put on his own pants. Great job little man. We are so proud of you!

God Bless you all!!

God Bless Caleb and Camryn!!

What a long day!

Hi all, I just wanted to give a quick update.   Caleb had the shunt series and catscan this morning and all looked normal but the doctors were concerned about Caleb's symptoms and how they were similar when the last shunt failed, so they ordered another type of shunt series.  This one is a bit more invasive (and there is another risk of infection as you are entering into the spinal fluid) as they tap (put a needle in the head and drain some of the spinal fluid out of the shunt) shunt.  Then after they check the pressure and take samples for cultures they injected dye into the shunt and watch with an x-ray to check the flow of the shunt and all looked great!  The only test pending is the cultures (to see if an infection is starting from the surgery), from the spinal fluid.  That will be a couple days until we know.  So, we still aren't sure what caused the wretching episodes and the lack of appetite.  Hoping it's just a virus.  I was told to watch him closely and if things get bad again to take him to the ER at Children's.  Today was a very emotional day for us.  Now I just want to relax and cuddle with my kiddos and wait for my hubby to get home. Thank you all for the prayers!  I will keep you updated on Caleb and pray that there are no infections from the shunt being tapped.  I am seriously thinking we need to find some contest to enter for a vacation-we need one, desperately.  A lot of stress lately!

Thanks again for checking in and all the support and prayers!

I will keep you all updated!

God Bless you all!!

God Bless Caleb and Camryn!!

Tests.

Early morning tomorrow. Heading to Children's, for Caleb, for a Shunt Series X-ray, Catscan, and a visit with Neurosurgery afterwards. I will post any updates when I have them!

God Bless you all!!

God Bless Caleb and Camryn!!

What is going on with my lil' man? *UPDATED*

I am writing this post as a very emotional mommy who has watched her little boy have so much sickness lately and who is sick again.  I am emotional because I feel so bad that I cannot figure out all the time what is making him feel so sick; and emotional that he has had a rough time lately.

Christmas Eve Caleb woke up with a very nasty cough that earned him a trip to Med Express.  He was put on an antibiotic and breathing treatments. Caleb did not eat a thing that day.  And once again, we can't ask him why as he can't tell us.  Later that day Caleb started dry heaving which we wondered if it was due to the congestion or was he getting a GI bug on top of the cold.  But in the back of my mind I am warped from the dry heaving he had recently with the shunt and found myself automatically fearing that also.  And again, he can't tell us why he was dry heaving.  :(  The next day, Christmas Day, Caleb did not eat at all and Brian's and my stress level continued to rise as we just don't know what is going on with him.  Well, the day after Christmas Caleb ate a little bit more BUT today he hasn't and had a very bad dry heaving episode again and is now asleep on the couch-very far from his typical behavior.

I am writing this to ask for HUGE PRAYERS!  I want my baby to feel better, to catch a break!  I try not to be negative, but I am very upset seeing him like this lately and not being able to fix it.  Please pray that he feels better and this is nothing serious and please pray for me and Brian that we are less anxious and stressed!  Thank you friends!


UPDATE:   He is awake, and acting normal. Good that he is acting normal BUT, still puzzled by the wretching this morning. Heard back from Children's and now we are consulting with Neurosurgery to see what they think.


Neurosurgery has scheduled Caleb for some imaging in the morning to check on his brain and see how the shunt is working and if it is the culprit of these symptoms.

God Bless you all!!

God Bless Caleb and Camryn!!

A Very Sweet Moment I Caught this Morning

Despite Camryn feeling a bit crummy this morning due to a cold, she always has love for her brother.

God Bless you all!!

God Bless Caleb and Camryn!!

Never a Dull Moment!

Caleb and his dog were playing, and Izzy's nail scraped Caleb's head.  It bled a lot.  Thanks Mom for rushing down here to help me!  The bleeding has slowed but it is still bleeding and wondering now if he needs a stitch or two.  

God Bless you all!!

God Bless Caleb and Camryn!!

New Eye Patch

Well, Caleb's other eye patch was breaking down his skin. So we are trying this one that fits over his glasses. He didn't seem to mind it too much.

God Bless you all!!

God Bless Caleb and Camryn!!

Caleb Hlebiczki Medical Fund

As most of you know, we used to have a Fund where you can mail checks to donate to the Caleb Hlebiczki Medical Fund.  We had to switch banks and now have the new fund set up at bank closer to us which makes it a bit easier!   So please notice the new info on the right of this screen detailing the fund.  This fund helps us pay off our very big pile of medical bills, which has gotten even bigger after Caleb's recent hospitalization and brain surgery.  We cannot thank you all enough not only for your monetary support by the HUGE amount of emotional support.  You all lift us up and have really helped us.  We thank you so much!

God Bless you all!!

God Bless Caleb and Camryn!!

The Wheels on the Bus

Well, I talked the transportation director and it didn't go as I had hoped.  Unfortunately, he believes that the buses cannot make it down our street and he 'has never sent a bus down this street in the 30 years he has been with the department'.  So where does this leave us.  I am conflicted.  I think riding the bus is a good experience for independence, but the in the same regard he has a harder time walking with the winter gear on, a bit harder for his balance issues.  I just wonder if I should start dropping him off again and picking him up until spring.  Bummer, but it may be necessary! 

More updates soon!

God Bless you all!!

God Bless Caleb and Camryn!!

Neurosurgery appointment

Well, Caleb's appointment went well! The doctor said Caleb's incision looks great. She also said she would think his fever would have come back by now if it was shunt related. I hope and pray she is right!

Thanks for checking in on us!

God Bless you all!!

God Bless Caleb and Camryn!!

A cold

Hi all! So it looks like the chicken pox case was while Caleb was out for his surgery. Phew. No we pray noone else in his class while the other child got it, doesn't get it and then expose Caybay.

Caybay has been back to school for three days and already has a cold. This is why I hate winter!

We are off to a post op checkup tomorrow for Caybay. Hoping all goes well!

Also, I know have a blogger app for my phone, that will now make updates easier. They may not be lengthy, but more frequent!



I will post how the appt goes!

God Bless you all!!

God Bless Caleb and Camryn!!