Well here is the email I received today:
'Well, our numbers came back only a little better--his IgG was 483. However, Dr. Markert feels that as long as he is in the normal range for his age (and he is--it is 391-1070) that's good enough so no more IVIG. (She feels the reccommendation for >600 is actually more applicable to > older patients.) We can check it again in a couple of months just to make sure it doesn't drift down over time. His tetanus antibodies were normal so she says he should proceed with his normal childhood immunizations (BUT NO LIVE VACCINES). Please ask the pediatrician to give all doses of the killed vaccines (as opposed to the "catch up" schedule which omits some doses based on age) And as we discussed, he should get the seasonal flu vaccine and the H1N1 vaccine when they become available. Please let me know when you schedule an appt with your pediatrician as we will want a blood sample just prior to his immunizations and I will ask them to repeat the thyroid profile. The one in the hospital was reported as "quantity not sufficient".
Stephanie'
So we of course have email them back with some questions! But this is great news! I don't have to stick him anymore every week for the IVIG infusions! He is going to get immunizations?!? Really?!? I never thought this day would come! I can't wait for more exciting milestones to come for his immune system! Keep working Immune System and Thymus! One more step closer to normalcy! Go Caleb! We are so proud of you!
God Bless you all!!
God Bless Caleb!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
13 comments:
FANTASTIC!!! I am so happy for you all!!
Hugs,
Crystal and Eva
That's awesome!!! Good things come to those who wait, persist, pray, fight, and love with all their soul!!!! God Bless and enjoy your celebration!! Now....EXHALE!!!!!!! Love you all!
YAY!! again worth the wait....that is excellent news and so excited for his progress....hope to see him next weekend!!!
love jenny
Fantastic news. Caleb is a fighter and is determined to make Dr Markert's work look great. We must always keep the faith and never forget to give thanks. Thanks everyone
for the prayers. God bless Caleb, Sarah, and Brian.
Gaga
WooHoo!!
Great News! Our wonderful God continues to show His love. Brian, Sarah and Caleb it is time for a family group hug. We love you.
This is amazing news!!! I'm so happy for you all and know that you are going to sleep better tonight...
Love you ALL! :)
That's wonderful!!! I'm so happy for you guys!!! Keep the good news coming!!!!
That is such awesome news! I am so excited for ya'll as ya'll take a step closer to "normalcy".
Kim
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