Oh we are here at Duke!!! Bitter sweet to say the least!!! It was very hard for us to leave Brian today...so hard. I already miss him so much. We love you Brian!!!!! Good news though...we are here!!! They have already started doing some tests on Caleb. They did their first set of blood work today and swabbed his cheek to get a better look at his cells. They didn't waste any time!!!
I just want to say to all of those that we left today at Children's Hospital in Pittsburgh (diagnostics, immunology, nurses, PT, OT, discharge coordinator, girls at the desk-who always buzzed us in :) ) we thank you again so much for all that you have done for Caleb and our family. You are all so special and were there for us on our good days and bad days and are truly amazing. What an amazing network of people on the 9th floor...truly amazing. You are our 'home away from home' and 'family'....THANK YOU!!!
Thank you to Jen, Jess, Andy, and Craig (spelling? sorry) who sent Caleb and I a care package. AND what a care package it was!!!! You two are my sisters and I love you both soooooooo much and miss you so much!!!
Chad, Jen, Sam, Casey, Stacey, Ben, and Hunter we love you all so much please send us pictures so I can post some pics of Caleb's cousins and also hang them in his room.
I cannot thank all of you enough-most of you that have read this blog have helped our family in amazing ways-reached out when we needed a hand to hold. Thank you so much and God Bless you all. I truly feel blessed to have you all as a part of our lives.
Again, I will post pictures and more details (address, phone #, etc) tomorrow. I just wanted to let you know we are here!!!!
11 comments:
Glad you made it safe and sound. Hopefully, the thymus transplant will be over before you know it and your family can be reunited.
Hugs,
Sarah, Jeremy, and Evan
So glad to know you're there and things are already in motion!!
Much love to all of you!
Chris
God Bless you all in this next leg of the journey!! The sacrifices you make now will payback tenfold and you will all be reunited soon, at home hopefully!!!
Don't worry about the spelling...it is Graig, spelled like Craig (that is actually what I call him sometimes!!). It is after a baseball player or something! You are so welcome! We love you!!! I am sure Caleb already has those rattles (as I believe it is quite possible he has every toy they make from the pictures) but we figued those would be good while he is recovering in bed. We love you all so much!! Keep up the good fight!!! Kisses to Caleb!!!!
Love Aunt Jen, Uncle Andy & Haleigh
Hello from CHP! Sarah and I are just about done with our shift and have been thinking about you all night. (it's just not the same looking at room 49 with the door wide open!!) We'll be looking forward to hearing all the updates. Hope you are adjusting to your new surroundings...one day at a time!
Keep in touch!
Love,
Sarah and Amanda
I'm so glad you made it safe and sound and they're already getting to work!!
You are very welcome for your care package...hope it put a smile on your face!! Don't worry about calling him Craig...my dad thought that was his name for the first entire year we dated! :) I can't believe I'm marrying him in 18 days. UNREAL!! :)
I love you all and miss you bunches...kiss that gorgeous boy for me!
XOXO
Aunt Jess
I'm so glad to hear that you made it down there! I was afraid that you might not be able to blog so soon, I'm happy you can!! I'm off to work now, I'll miss you all in 49 but, it's all a step in the right direction! Hugs to all three of you in NC and Brian in WV!
One of the 9th floor crew - Chelsea :)
We're praying for things to go smoothly and quickly for sweet, cute Caleb.
God Bless you all!
Love from MO,
Corrie
Oh I am so glad you made it!! My thoughts and prayers will continue with you all.
Crystal and Eva
hey sarah and calab and grandma linda i'm so glad you all made it and to hear everything is started and going well your at the top of your mountian and coming down now your in my prayers and thoughts everyday take care and stay positive
all my love and prayers
alana
Good Luck little guy!
Sarah, Caleb and of course Brian,
I know we talked after you got there but we wanted you all to know that you are all in our prayers. Sarah, don't worry about Brian. His family here will take care of him. Stacy and I extended the invitation to him for dinner at our house every Sunday night. Mom, we will do the same for dad.
Love you all,
Ben, Stacy and Hunter
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