Okay, so they don't think Caleb has GvHD (Graft versus Host Disease). It doesn't look like my cells are what they are seeing in Caleb's body. They are wondering if Duke may want to run the same test just to make sure they get the same results. Another idea that may be going on with Caleb's immune system is that it is taken awhile for his to 'spark'. If that is the case, he would be closely followed and then we would see if it would fully 'spark' or if may need help. As far as what they would do to help they are still not sure. They are still considering many test to see if his system needs to be given a chance to spark or if there are other causes for his immuno deficiency.
Caleb had his sedated Echocardiogram today, however, we haven't heard anything back yet on that. We are hoping that nothing has changed regarding the ASD (hole in his heart). We are hoping to hear something later on today.
Caleb also had a skin biopsy to check to see if he has Ehlers Danlos Syndrome. I have this syndrome (Type 2-Classic) along with my mother and one of my brothers so there is a fifty/fifty percent chance that Caleb has this Syndrome. If he does have this Syndrome it effects his healing, joints, tissues, etc. It is a connective tissue disorder. We probably wont know those results for awhile. Along with the skin biopsy they did another detailed chromosome test on Caleb to see if they see anything else that may tie the immuno issues with the CHARGE. Again, probably wont have those results for awhile.
3 comments:
Sarah,
Thank you for giving me your blog address today. I have spent many days talking with your mom about Caleb in that God awfully depressing waiting room. In finally seeing a picture of him, I see that your mom described is beauty to a tee. He looks so sweet you just want to pinch his cheeks. Every night I e-mail out an update on our Jacob's progress and include a list of children and their families that we've become close to and ask that a prayer be said for them, Caleb is on that list. I will continue to do this until he makes the big splash in the world that God has meant for him to make. Keep up the faith, because I am a firm believer that if we quit believing in our children and in what God can do for them our miracles quit happening and we know how many have happened for our guys and how many we still need.
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