Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"

Thursday, March 01, 2007

Another does of IVIG

Today Caleb is getting another dose of IVIG (Intraveneous Immunoglobulins)-his temporary doses of an immune system. He also had the second batch of blood drawn today for Dr. Markert at Duke. So we may get results concerning that within a week or so. It is pretty much another deep analysis for her to work him up as well as the what type of thymus tissue he will need for his transplant.

Good news (we love getting that) - We really think this hearing aid is helping Caleb!!! Since all docs, visitors, and nurses are in isolation gear (masks, gowns, and gloves) when they come in... Caleb would not be able to see their mouths or facial expressions BUT NOW that he has his hearing aid he is doing great he is responding to what people are saying behind their masks. In addition, the cyclosporine is really helping his skin, the t-cells are not attacking it for the time being. He looks great, not as many skin break down issues. It was so exciting, one of the docs that hasn't seem him in awhile came in to visit as many nurses and docs have as they have heard reports on his skin and hearing and how different things were. Her exact words 'I am so excited, this just made my night. I have left this room before really worried about Caleb and he looks so good tonight. He can definitely hear look at him responding. I am in such a good mood guys (talking to me, Brian, and Caleb). He looks so good!!!' So that really boosted our excitement level.
He really looks good guys, what a tought kiddo-he amazes us every day and makes us so proud. Now just keep the prayers up that he stays healthy before, during, and after his transplant.


skeybunny said...

Hi Caleb,

Amy sent me the link to your blog, and I've read the whole thing. Thank you for sharing Caleb's story--he is such a sweet boy and so strong. I hope that the IVIG continues to strengthen him until his thymus transplant. Caleb is almost exactly a year younger than my son Evan (7/15/2005), who also has CHARGE.

Sarah, Jeremy, and Evan Storrs

CrystalandEva said...

I am so glad the hearing aid is helping, I know it helps Eva when we put it on you can tell she is hearing everything around her.
Keep up the great work Caleb!!

Crystal and Eva