Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"

Sunday, March 11, 2007

Another Fun Weekend and a Visit with Daddy

Another fun weekend with daddy. Caleb is all about the texture of his daddy's beard, loves to reach out and try to put his hand on his daddy's face. TOO cute, if you ask mommy!!!!

Okay had to enclose this picture of Caleb and mommy too, as he was so funny when he was laughing at me when he was up on my shoulder.

Orthopedics came on Friday and said Caleb's hips, per an x-ray, look good. They are a little 'developmentally delayed' for his age but they will be as he has been in a hospital which delays sitting, crawling, etc. The docs believe that as soon as he starts to put more weight on those joints that they will become stronger. Again, we will have to watch him closely when he starts to crawl and walk.

Gram and Pap Pap Byrum got Caleb an exercise chair that daddy and mommy tried out with Caleb this weekend. I can't even put into words how proud Caleb makes us, he is sooooo strong!!! He did great, he even pushed off flat-footed (as that is big as you don't want them to try to toe walk) a couple of times on his own while he was in his chair. He doesn't have full trunk support yet (but he is getting better every day) so we supported him with a white sheet around his trunk. AND can I just take a proud parent moment here and say what a CUTIE!!!!!

Caleb's Physical and Occupational Therapists, as well as his docs, are very encouraged with his developmental progress. He is doing great with 'cause' and 'effect' exercises too!!! He is fighting along. I know that sometimes these items that I post regarding developmental milestones seem like normal things for an every day child, but Caleb has CHARGE syndrome which can make some minor milestones seem so significant. From the CHARGE syndrome foundation website 'Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.' Thefore, you can see why sometimes what others see as the 'little things' are no so little to us.

He still has a runny nose and we are hoping that clears up within a couple days and does not progress into anything else, so please keep the prayers up that this runny nose goes away!!!

Also, please note, I am going to start adding links to the upper left part of the page for Caleb's pictures, his old blog, information regarding Duke, information regarding CHARGE, etc.
Well the little one is getting up...gotta go.


skeybunny said...

Way to go Caleb--you look like such a big boy in your exersaucer. I know that therapists don't really like exersaucers, but I am convinced that using one was crucial for Evan to develop his trunk strength (he would NOT do tummy time!).

Hugs from WA,
Sarah, Jeremy, and Evan Storrs

PS Feel free to post a link to Evan's site--I know my friends and family love to read about other kids with CHARGE

Maxwell and Amy said...

I second Sarah's comments on the exersaucer! Max LOVED it and I think it really helped him develop strength in his neck, torso and legs too! :)

He is looking soooo super cute in your arms...and with his daddy! WOW!

Thinking of you lots...
Amy and Mighty Max

Crystal and Eva said...

Great job little man!! Sounds like everything is moving along. I also love the pictures and you are so cute laughing at mommy.
Crystal and Eva

ellen said...

very cute pics and glad hes doing well the little chargers never cease to amaze us all

gram byrum said...

It is so much fun to watch Caleb grow and change each day. God is truly holding this little boy in His hands. Caleb takes each new challenge and shows everyone how it is done.
PS Pap and I are so glad you like your new toy. Keep up the great work!

Chris B said...

What a cutie pie!! How he is growing!!!

Much love-