Caleb Paul Hlebiczki: Eating.

Saturday, February 22, 2014

Eating.

I am sitting here watching Caleb eat and reflecting. I remember when we finally got him home we would still feed him by his feeding tube and nutrients via his IV. Every time I would feed him his formula through his tube in his belly or hook him up to his IV, I would pray for the day he would eat by mouth. I remember sitting with him trying a spoonful of pudding or applesauce and he was so sensory sensitive it hurt him to eat. To sit and watch him eat..wow. Way to go Caleb!! The boys eating dinner.

God Bless you all!!

God Bless Caleb and Camryn!!

No comments:

Post a Comment

Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.