Caleb Paul Hlebiczki: Playtime.

Saturday, February 15, 2014

Playtime.

Moved the Wii to the playroom for Caleb this morning. He is so happy! He promptly gave me the boot out of the room so he could have some fun. Here is a pic I snuck of him playing. How cute! His sister has come down with something during the night. Hoping Camryn feels better soon (she is catching up on some sleep right now) and that Caleb doesn't get it.

God Bless you all!!

God Bless Caleb and Camryn!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.