Caleb Paul Hlebiczki: Verbal Moment

Monday, March 03, 2014

Verbal Moment

I love when Caleb has a big 'verbal' moment. I just caught him singing a whole verse from No more Monkies Jumping on the Bed. A WHOLE verse. I tried not to acknowledge as if he saw me looking he would get embarrassed and stop. I sat and listened and smiled. Beautiful sounds. Beautiful.

God Bless you all!!

God Bless Caleb and Camryn!!

1 comment:

Mette Joensen said...: Dear Caleb and family.
I just found your blog, and will look forward to follow you.
I too have a son (Mads) with CHARGE and DiGeorge. He is now 3 years old and had a thymus transplant in London, January 2012. We have been out of the hospital for a year now, and Mads is doing well.
Just wanted to say Hi. :-)
I have been looking to find other thymus transplanted children, just to maybe exchange experiences...
We live in Copenhagen, Denmark.
All my best wishes for you all.; 9:00 PM

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.