Caleb Paul Hlebiczki: Heart awareness Month

Friday, February 07, 2014

Heart awareness Month

February is Heart Awareness month. One of Caleb's 40 plus surgeries was an open heart surgery. He had this surgery at Duke while we were waiting for his Thymus Transplant surgery. Caleb's heart went into heart failure while we were at Duke and they moved up his heart surgery before his transplant. Reading back on this posts this morning..phew took me back. What a strong boy and family. Feel free to read the post below. Happy Heart Month Caleb!

Paul Hlebiczki: Surgery Update: The picture at right is one that was taken a couple days before his surgery. Well the surgery took half the time they thought. They did fix ...

God Bless you all!!

God Bless Caleb and Camryn!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.