Caleb Paul Hlebiczki: Wear Red

Monday, February 04, 2013

Wear Red

Even though today is Wear Red for Women"s Heart Day, I am wearing red for my son, Caleb. He was born with two holes in his heart and an extra atrium. What was supposed to be a planned heart surgery turned into an emergency heart surgery while we were at Duke waiting for his Thymus Transplant, because he started to go into heart failure. So yes, I honor all the women out there, but I honor my son who has fought a very hard battle and continues to do so. I am very proud of you Caleb. I love you!

God Bless you all!!

God Bless Caleb and Camryn!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.