Tomorrow is another clinic day for Caleb. Tomorrow, he will see Audiology first to get a hearing test. This is the follow up hearing test to the imaging done during his last surgery. Then, after that, we will see the hearing specialist to discuss the hearing test in correlation with the images. We already know the results of the images, but are really hoping, that by some miracle they let us try the trial BAHA, a soft band baha, to see if that could help Caleb hear in anyway. We know from his imaging that Caleb's ear anatomy is VERY abnormal. To quote the doctor 'the most abnormal he has ever seen'. However, I do know from another wonderful CHARGE mommy that she was told her daughter would not benefit from the BAHA but definitely has. I just want him to try the soft band BAHA (this is a trial BAHA a real BAHA is implanted behind the ear in surgery). I just think, what can it hurt to try. I know Caleb will not tolerate the band being put on him in the office, yet I am hoping they 1. try it and 2. let us go home with it as I know he will respond better to trying it in his own environment. So, we would appreciate the prayers for as good of a hearing test that he can get and them allowing him to try the soft band BAHA. I will update the blog tomorrow. Thanks all!
God Bless you all!!
God Bless Caleb and Camryn!!
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