Hi all! I hope everyone had a great weekend.
Caleb's growth tests have come back. They did an xray and hormone tests to check his growth levels because kiddos with one of the syndromes he has do have growth problems. Caleb's bone age, from his x ray showed an age of 7 and he is 6. So this bone age looked good. However, his IgF, growth hormone, was on the low side. With that being said they do not want to diagnose him yet as having a growth problem. Caleb is a very picky eater and we have always given him 1% milk. The doctors want us to try to increase Caleb's caloric intake to see if he can gain weight. If he can, no growth deficiency. If not, then he may need the daily hormone injections to help him grow. So we have changed his milk intake from 1% to vitamin D milk and if need be will start supplementing with Ensure or Carnation, but we just don't want the Ensure or Carnation to take away his hunger. So we will watch his weight closely and see how it goes.
The immune and heart tests are still pending.
God Bless you all!!
God Bless Caleb and Camryn!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
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