Caleb Paul Hlebiczki: Steak Fry

Sunday, September 23, 2012

Steak Fry

The steak fry went so well Friday. It was a huge success. Thank you so much Keith for your hard work and making this such a huge success. Thank you to all the people who donated for the various prizes and to all of our family and friends that were there to show support. We cannot thank you enough.
Tomorrow Caleb has more clinic appointments. He will see Endocrine, cardiology, nephrology, and ophthalmology. Cardiology will be looking at one issue that was noted regarding his heart during his last admission. Hopefully, it's nothing. Please pray these are uneventful visits.

God Bless you all!!

God Bless Caleb and Camryn!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.