Caleb Paul Hlebiczki: Clinic update 1

Monday, September 10, 2012

Clinic update 1

Update: kinda bummed the hearing specialist was not notified we wanted to talk about the BAHA implant. So, we have to now schedule another appt on top of the day of clinic appointments two weeks from today. Already coordinating docs for his next surgery. So far these docs include dentist for teeth cleaning, cavities (from reflux), caps ( due to him grinding his teeth down), ENT (for tubes), possible brain stem hearing test, and MRI. We will see if any more docs from today or in two weeks will be added on to the surgery. More updates to come. On a lunch break now.

God Bless you all!!

God Bless Caleb and Camryn!!

No comments:

Post a Comment

Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.