Here are some Easter pics. We had a very nice day!
The Easter Bunny even stopped by our house a couple days early so Caleb could see him through the window! Caleb didn't really know what to make of it as he really has never seen anything like that before as we haven't ever been able to take him to get pictures taken with Santa or the Easter bunny, so needless to say for a child that is a shut-in and in isolation precautions it was definitely something new, but so so neat for him to see and experience.
The piece of paper with eggs colored on it was going to be how I thought we could try to communicate with Caleb on the fact that he has to hunt for Easter Eggs. But he decided to get up really early Easter morning and when it was time to hunt for eggs he wasn't in a good mood at all so we decided to forgo the Egg Hunt. Maybe next year...
He got a lot of wonderful gifts from the Easter Bunny and his grandparents...cars, trucks, paints, books, DVDs, etc. He also got some candy, which I hope he tries to eat just a little bit of it...We will see!
We are also anxiously awaiting our busy day tomorrow. Tomorrow we meet with Birth to Three to discuss his transitioning out of their program and we will see what he will need as far as care to continue his therapy. Also, we have our meeting with Make a Wish...and we still don't have a wish! Yikes!
I will post as soon as I can to update everyone on the meetings!
God Bless you all!!
God Bless Caleb!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
1 comment:
Looks like you all had a nice Easter!! I love the pics of him near the end w/the basket - he is so CUTE!!!
Good Luck w/both of your meetings and I'm sure whatever wish you guys choose will be awesome!!! So excited to find out!
Have a great week!!!
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