Caleb Paul Hlebiczki: DiGeorge Highlighted on Good Morning America

Tuesday, July 15, 2008

DiGeorge Highlighted on Good Morning America

Good Morning everyone. I just wanted to share some information. I just got a phone call from my best friend Jen, who said that Dr. Markert was highlighted this morning on Good Morning America. They talked about the transplant that the immunosuppressed kids get, like Caleb. Jen believes they may discuss it again tonight on Nightline for all who are interested.

Thanks Jen!

God Bless Caleb!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.