Well we had to take Caleb to the hospital last Friday because he seemed to have a stomach ache. After they ran some tests, they found out Caleb had pancreatitis. One of your pancreatic enzymes, lipase, should be 200 and his was 10,000. So needless to say, he wasn't a happy camper. They kept him in the hospital until yesterday. His level is still high, 1800, but it is better than what it was. He isn't allowed anything by mouth or feeding tube until he feels better. Thanks to Aunt Jen for sending updates and thanks to all for your prayers.
Also, we still haven't heard anything regarding the immune tests so when we hear about that we will post too.
God bless you all!!
God bless Caleb!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
4 comments:
God Bless YOU!! So glad you are back home and he is feeling a little better. We will keep the prayers coming that the level continues to drop! Miss you!! Love you!!!
Kisses to you all!! Can't wait to do it myself some day soon!!
Love-
Aunt Jen
So glad to know you are back at home!! Jen sent me the picture of Caleb in his car seat - he looks fabulous!! I'll be anxious to hear about the results of the immune system testing.
Much love-
Chris XOXO
Thanks for the update and I'm glad to hear Caleb is home and improving. The pictures of him are adorable, he looks great. I'll continue to keep you all in my prayers,
Love, Niki
My thoughts and prayers are with you all, I hope he feels better soon.
Hugs,
Crystal and Eva
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