Hello all. . . we are trying to get more updates on the blog more frequent. Brian got over his sickness so it is me and him again working as a team again to take care of our little man along with a nurse that comes for 8 hours 5 days a week (however-we still should have nursing care more often). But Brian and I do pretty well as long as both of us are healthy.
So Caleb went to cleft-craniofacial clinic last week for a checkup. Unfortunately, do to us being stuck in traffic for a very long time we missed Dr. Losee, but another surgeon saw him and said the healing process looks good. Just keep up the care we are doing. We also talked about speech therapy and audiology therapy with our friend Matt at cleft-craniofacial and Caleb will probably need some therapy but we will have to wait until we get more immune function before Brian and I feel comfortable brining therapists into the home.
Which brings me on to the next topic. We did have blood drawn for immune studies. So pray hard that his T-cells (Immune System) is continuing to grow. As soon as we know anything we will post.
As promised pics.
On a final note, please keep our little friend Jacob Rice (Buddy) and his parents, Nick and Jessica in your prayers. As Jessica's mom said: 'little Buddy hatched his wings and flew to heaven to be with God' on May 9th. We met this wonderful family during our stay at Duke. Please keep them in your prayers. We love you all!!
God Bless you all!!
God Bless Caleb!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
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8 comments:
All sounds well, and I love the new pictures of Caleb what a handsome young man, not that he wasn't before. They did an awsome job on his cleft repair.
Hugs,
Crystal and Eva
I will pray extra hard in the coming days while the doctors and nurses are testing Caleb's blood for T-cells.
You guys did a GREAT job on his haircut - its amazing how much older that makes him look! :)
He looks great and looks so happy...I love to see the pics!
I hope you had a fabulous Mother's Day, Sarah...love you!
He is so amazing and you look so beautiful!!! God Bless you all!!! I love you bunches!! Glad Brian is feeling better. Can't wait to see you again!! Love you all!!
Love-
Jen
What a cutie!! Everyone looks great and happy - such a treat to see the pictures!
I'll be anxious to hear about the latest test results...
Love-
Chris
He looks GREAT!! I can't believe how much hair he had!! I am so glad things are moving forward...I hope the test results will continue to bring positive vibes! You guys are doing great and you look awesome! Hope you enjoyed Mother's Day!
Love
Jenny, Darin and Keira
ok hes sooooo beautiful and blessed. i have to say gret job on the haircut.thanks for letting us see calebs progress it is just amazing god bless your family
love alana
Hi! This is Jackie Saladino (I was Jackie Matus back when you knew me) and took care of Caleb when he was in the Children's Hospital last year before he went to Duke. I've been reading your blog ever since. I just wanted to say how great it was to see pictures of him- he's definitely grown up into a toddler since I met him! I'm wishing all the best to you all- yea T cells!
Hi Sarah!
It is wonderful to see the great pictures of your sweet little man!
xoxo
Lee, Jon and Zoe
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