Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story.
God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
Hey guys! We miss you down here at Duke, but it looks like you are all loving life at home! We looked at the pictures and he is SO CUTE!!! His post-op pictures look great ... he doesn't even look like the Caleb we remember! Keep us updated!!
What a huge blessing to watch him getting to be out of a bed and interacting!!! He is so ridiculously beautiful!!!! Almost not fair that one little boy has so much beauty and light!!!! I so pray for the day that we can all play together!!!! Thank you, thank you, thank you for taking the time to put this together. What joy!! I love you all so much!! God Bless!!
Sarah, I am moved beyond words at how incredibly amazing, beautiful, and joyful Caleb is. I can't wait to meet him, and see you and Brian again. God continue to bless you all! Love, Hannah, Shane & Ben
Caleb I am so happy to read all the wonderful news and updates on you and beautiful pictures, you are getting so big and you no longer look like that little baby anymore, you are a big boy now!! And that hair!!! WOW!! I love it!! Keep up the great work Caleb, we love you, Crystal and Eva PS you might want to have your mommy check out this video for mothers day... http://www.onetruemedia.com/shared?p=5b5306fcddc87a79103d47&skin_id=701&utm_source=otm&utm_medium=text_url
I've visited before but I don't think I've ever left a comment. The video is awesome. It's so amazing to see how far you have come! You are such a beautiful boy and have such a beautiful smile, both before and after your surgery. You're like a little ray of sunshine. You bring a smile to my face.
Amazing after pictures from his repair. Our son Cameron has a bilateral cleft lip/nose. All repaired now except for the gumline. Amazing what plastic surgeons can do these days. What a beautiful face - before and after. Our best to you all. Rebecca Mom to Cameron, 6, CHARGE and Nathan, 8
This is the first I have been to Caleb's blog. I hear so much about him from Alana (and your Mom, Sarah). He is even more handsome then I ever imagined. I am so happy for your family and Caleb's progress. I could watch the video of him over and over. I look forward to the day that you get to post a picture of him playing outside! I pray for Caleb's future and can't wait to meet him. Happy Mother's Day.
11 comments:
Such a HAPPY boy!! Those are great pictures of life at home...and the post-surgery shots are amazing!! Thank you so much for sharing.
God Bless all of you!!
Chris
XOXO
I could watch it all day....
He's so handsome!! :)
Love you all...
Jess
Hey guys! We miss you down here at Duke, but it looks like you are all loving life at home! We looked at the pictures and he is SO CUTE!!! His post-op pictures look great ... he doesn't even look like the Caleb we remember! Keep us updated!!
~Kristin Critcher and Julie Husske
What a huge blessing to watch him getting to be out of a bed and interacting!!! He is so ridiculously beautiful!!!! Almost not fair that one little boy has so much beauty and light!!!! I so pray for the day that we can all play together!!!! Thank you, thank you, thank you for taking the time to put this together. What joy!! I love you all so much!! God Bless!!
Love-
Aunt Jen
Sarah, I am moved beyond words at how incredibly amazing, beautiful, and joyful Caleb is. I can't wait to meet him, and see you and Brian again. God continue to bless you all!
Love,
Hannah, Shane & Ben
Caleb I am so happy to read all the wonderful news and updates on you and beautiful pictures, you are getting so big and you no longer look like that little baby anymore, you are a big boy now!!
And that hair!!! WOW!! I love it!!
Keep up the great work Caleb, we love you,
Crystal and Eva
PS you might want to have your mommy check out this video for mothers day... http://www.onetruemedia.com/shared?p=5b5306fcddc87a79103d47&skin_id=701&utm_source=otm&utm_medium=text_url
If the link doesn't work its on Eva's blog!!
Crystal and Eva
I've visited before but I don't think I've ever left a comment. The video is awesome. It's so amazing to see how far you have come! You are such a beautiful boy and have such a beautiful smile, both before and after your surgery. You're like a little ray of sunshine. You bring a smile to my face.
Shelly & Luke
Amazing after pictures from his repair. Our son Cameron has a bilateral cleft lip/nose. All repaired now except for the gumline. Amazing what plastic surgeons can do these days. What a beautiful face - before and after. Our best to you all.
Rebecca
Mom to Cameron, 6, CHARGE and Nathan, 8
Caleb,
You look amazing! I'm so glad your surgery went well--3 days and then home...awesome!
Hugs,
Sarah, Jeremy, and Evan Storrs
This is the first I have been to Caleb's blog. I hear so much about him from Alana (and your Mom, Sarah). He is even more handsome then I ever imagined. I am so happy for your family and Caleb's progress. I could watch the video of him over and over. I look forward to the day that you get to post a picture of him playing outside! I pray for Caleb's future and can't wait to meet him. Happy Mother's Day.
Much love and blessings!
Lara Graves
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