Eating.

I am sitting here watching Caleb eat and reflecting.  I remember when we finally got him home we would still feed him by his feeding tube and nutrients via his IV.  Every time I would feed him his formula through his tube in his belly or hook him up to his IV, I would pray for the day he would eat by mouth.  I remember sitting with him trying a spoonful of pudding or applesauce and he was so sensory sensitive it hurt him to eat.  To sit and watch him eat..wow.  Way to go Caleb!!  The boys eating dinner.  

God Bless you all!!  

God Bless Caleb and Camryn!!

Update

Caleb had a very rough day but in the last two hours he is doing better.   

Thank goodness. 

  This is a picture of his sister helping me take care of him today.   So happy they are close. 

God Bless you all!!

God Bless Caleb and Camryn!!

Winter Germs.

Unfortunately Caleb has caught what his sister has.   He is pretty sick right now.    Poor kid.  

God Bless you all!!  

God Bless Caleb and Camryn!!  

It doesn't get any better

It doesn't get any better than this.   

God Bless you all!!  

God Bless Caleb and Camryn!! 

Playtime.

Moved the Wii to the playroom for Caleb this morning.  He is so happy!  He promptly gave me the boot out of the room so he could have some fun.   Here is a pic I snuck of him playing.   How cute!   His sister has come down with something during the night.   Hoping Camryn feels better soon (she is catching up on some sleep right now) and that Caleb doesn't get it.   

God Bless you all!!

God Bless Caleb and Camryn!!

Heart awareness Month

February is Heart Awareness month.  One of Caleb's 40 plus surgeries was an open heart surgery.   He had this surgery at Duke while we were waiting for his Thymus Transplant surgery.   Caleb's heart went into heart failure while we were at Duke and they moved up his heart surgery before his transplant.   Reading back on this posts this morning..phew took me back.  What a strong boy and family.   Feel free to read the post below.  Happy Heart Month Caleb!

 Paul Hlebiczki: Surgery Update: The picture at right is one that was taken a couple days before his surgery. Well the surgery took half the time they thought. They did fix ...



God Bless you all!!



God Bless Caleb and Camryn!!