Caleb Paul Hlebiczki: Morning.

Monday, January 20, 2014

Morning.

Well Caleb got back up around 9 lastnight and seemed okay before I went to bed. He stayed up with his dad for a bit so I'm hoping he continued to feel better. He did this a couple weeks ago when my parents were watching him over Christmas break. Not sure what's going on. We have heard some kids with VP shunts can get headaches with the change in barometric pressure. The weather is changing again and was really cold a couple weeks ago when he did this. Could it be that? Could it be the abdominal migraines that we have wondered about? Could it be the run of the mill virus? We don't know and it is so frustrating to not know and not be able to help your kiddo when they lay on the floor crying trying to go to sleep and you have no idea why.

I hope today is a better day. I will update later.

God Bless you all!!

God Bless Caleb and Camryn!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.