Caleb Paul Hlebiczki: Yep. He's amazing.

Friday, January 18, 2013

Yep. He's amazing.

So after bath time Caleb, Camryn, and I went into Caleb's room to wait for daddy to get ready for dinner. While we were waiting we got out the glow color board. Caleb drew a circle so I yelled 'circle'. Then it happened. He started writing a whole bunch of letters waiting for me to guess what letter. It was awesome. He wrote so many letters. I'm so proud of him. It was absolutely amazing.

God Bless you all!!

God Bless Caleb and Camryn!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.