Caleb Paul Hlebiczki: Ouch

Tuesday, January 15, 2013

Ouch

Well, Caleb had his blood drawn yesterday. It was one stick, with A LOT of maneuvering. OUCH! He got upset, but was a trooper. He did great. Now we wait for the results.

Also, a couple prayers requests. Our friend Gary was a in a very bad car accident and could really use a lot of prayers as well as his family. Also, please keep my mom in your prayers as she is having surgery today.

God Bless you all!!

God Bless Caleb and Camryn!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.