I did receive some great ideas on some approaches and items to try to get Caleb to drink. Thank you everyone so much! HE LOVES TO EAT now so if we can only do that for drinking and get that feeding tube out I would be ecstatic. I can't believe that when he first came home we dealt with his central line, IV, too. WOW! What he has been through. I pray that he can continue to make improvements and keep fighting. I also pray that his immune system continues to improve. I am gonna write his docs at Duke today to just get some feedback. We are still living in complete isolation for his safety, but just want to see if they have any suggestions on anything that we may be able to do with him now and if we can take him anywhere.
Also, if anyone has any craft ideas that I can do here at home with Caleb I would greatly appreciate. You can only play with Playdo and coloring books for so long. So any suggestions for crafts would be great. I think he and I will make cookies tomorrow while his daddy is off. OH and also I am going to get my hair done tomorrow! WOHHOO so exciting, I haven't had it done in about five months so it could use some work.
Well, I gotta go, I will post pics of some cookie making tomorrow!
Thanks for stopping by!
God Bless you all!!
God Bless Caleb!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
3 comments:
Enjoy your hair appointment!!! After 5 months - I know that will feel amazing!! I'm sure it will make you look even more beautiful than you already do! :) Make some yummy cookies too! ;)
Love you!!
The ideas r terrific. They'll keep u busy experimenting. Caleb is surely growing up and it was so wonderful to see him this past weekend. Love you all!
Finger paints are always fun. But two plastic vinal tableclothes, put them and him on the floor and see if he'll paint.
You could get him to glue different types of objects to construction paper, maybe trace a shape on the paper and then try to fill in the shape. He could glue things like cotten balls, dry noodles, tissue paper, etc.
Hmmm, can't think of anything else right now, but if I do, I'll let you know!
Yay for Caleb doing so well!!
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