Caleb Paul Hlebiczki: Still waiting

Monday, November 09, 2009

Still waiting

So we are still waiting on the H1N1 vaccine for Caleb. It is absolutely amazing to me how this gentlemen, keeps 'forgetting' to drop off the vaccine to Caleb's pediatrician's office. My brother actually got the Mayor involved and the Mayor had to call the Health Department Administrator to remind him to drop off the vaccine, so we will see if he drops it off today....Amazing....we have been waiting for a month now for this shot....absolutely ridiculous....

Please pray that Caleb can continue to stay healthy and can get this shot ASAP...

God Bless you all!!

God Bless Caleb!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.