Well all here are a couple updates. . .
Feeding
Caleb is still having issues regarding gagging after getting a feed because he is trying to figure out how to burp, but can't due to the Nissan wrap. The docs said it can take up to 4 months for his stomach to get used to the wrap. They are doing a couple 'rule-out' tests (shunt series x-rays, GI swallow, Gastric Emptying Study) to make sure nothing else is causing the gagging. Once I vent the Mic-key he gets rid of some gas and feels much better. It is just tough to see him so uncomfortable. AND yes....Caleb got his Mic-key button (replaces the G-tube). The Mic-key is so much better as it is a lot less cumbersome than the G-tube and doesn't tug on his belly as much. It is also a lot easier to dress the little one.
Teeth
Caleb has two teeth!! His bottom two front teeth came in and they are so cute. I think he may be trying to cut more teeth as his body temp is a little warmer (hopefully it is nothing else) than normal.
UTI
Caleb has a UTI so he is on some tough IV antibiotics to hopefully get rid of the infection.
Hearing Aid
Caleb has been wearing his hearing aid more, which he doesn't like it when I put it in but is happy after it is in. We had to get a new mold done here about a month ago, because he has grown. However, he wasn't able to wear it a lot lately due to a lot of stuff going on here. The hearing aid seems to be whistling a lot so I am going to ask if Audiology can come and look at it and make sure it fits okay...doesn't seem like it sits down far enough into his ear canal.
Development
I ordered a play pen for Caleb online. We are hoping this will help him with crawling and more developmental milestones as it is hard and dangerous to do so in a metal crib. In addition, the floors here are not the cleanest so I am not willing to put him on the floor. Hopefully, he will like the play pen!
Well there are more updates but my man is waking up from a nap and wants to play. I will write more later.
God Bless you all!!
God Bless Caleb!!
14 comments:
Congrats Caleb on your new teeth! I'm so glad to hear he is doing well and is anxious to start crawling - he's an amazing little man!
Prayers and lots of Love,
Niki
It sounds like things are going pretty well with sweat Caleb.Tate just got some new teeth and it makes him look so grown upand qute.I hope things continue to go smothly with Caleb.
Bailey(friend of Tate young)
wow ur doing so great
I can't wait to see pictures with his teeth!!! SOOOOOO Cute!!!! Keep it up big man and all your friends and family are working hard to make sure we have everything in order for you when you get to come home!!!! We miss you and your mommy and Ga-Ga SOOOOOOOOOOO much!!!!!!!!! God bless you all!!!!
Love-
Aunt Jen
AAWW 2 teeth that is so sweet. Sounds like things are getting better one step at a time but better. Keep up the great work and I hope things keep moving along.
Hugs and prayers,
Crystal and Eva
What about a big mat for the floor? That is what we used and that way you can play with him AND you can keep it clean!
Any new photos to post??? We want to see the cutie patootie!
Love you! Amy and Max
Yeah!! for Caleb. Sounds like he is doing better. What a fighter! I bet he is adorable with the little toofers. Can't wait to see his cute smile with them. We're praying for your return home to come soon!!
Love, Becky and Bobby D.
Sweet Caleb,
It's great to hear about some non-medical things. We're so happy for you little guy! You keep it up!!!!
Hope those aids get better(new molds maybe) that whistling is annoying!!!! Tate's cat bit his because it was whistling and broke it!!!
Give your mommy a hug from us!
Love,
Corrie
Congratulations "Big Guy". I can't wait to see your new teeth the next time I visit. You are such a joy. I love and miss you all
Can't wait to see pics with Caleb's teeth!! I'm wondering if the playpen arrived and how he's doing with that?
Trust the recovery is continuing well
Much love-
Chris XOXO
Love to hear all the positive, good news! Caleb is so handsome! He is truly a fighter. He gets it from Mommy & Daddy. You are all amazing.
Much love and prayers to you.
Robbie, Drew & O
I hope things are still going well and I was wondering if you could email me Caleb's address at the hospital, I don't know if you are in the same room anymore and I have a card I want to send you all.
Hugs,
Crystal and Eva
Hi, Sarah, Brian, Caleb, and family!
I was so thrilled to hear that Caleb got his transplant and now I am beyond thrilled to hear that he is doing well!
It is so nice to see pictures of Caleb, he's getting so chubby and he's as handsome as I remember! (And he sure does smile a lot!)
We miss you all and think about you often, you continue to be in our thoughts and prayers.
God bless you guys,
Love,
Chelsea (CHP)
I know that Daddy and Pappy Bernie left today after a 4 day visit...I hope you guys all had a good few days together!!
Love you and miss you all SO much!!
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