Hi all, Sorry for the delay in updates. Our computer broke so it is hard to get to the Ronald McDonald Room to use the computer.
Caleb is playing tons. We have a couple issues. His LFTs, liver function tests, are up so they are doing some tests to see what is causing it. Hopefully, if anything it is his TPN. We are working on his feeds to hopefully get him up to a high level. Slowly but surely we are working towards it. His biopsy on his Thymus can't even happen until EARLIEST November 12th. So hopefully we continue to keep Caleb healthy. As soon as we get our computer back I will post some pics.
I will update more soon.
God Bless everyone.
God Bless Caleb!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
12 comments:
God Bless you Caleb!!!!
We love you!!!
God Bless you all!! Thanks for the quick update. Hope you enjoyed a nice visit. Glad to hear Caleb is playing tons. I can't wait to see pictures of Caleb in his playpen!!!! Love you all!! Big kisses to Caleb!!
Love-
Aunt Jen
So nice to hear that Caleb is "playing tons"!!
Love to all of you-
Chris XOXO
I am so happy to see an update, playing tons huh, that is great!!
I will continue to have you all in my thoughts and prayers!!
Hugs,
Crystal and Eva
yea for the update!
he is an amazing kid, we think about him and pray for him every day.
christie and fam
Thanks for the update. Sounds like you're able to just enjoy Mr Caleb right now somewhat until the big testing? That's so fun. I wish he and Tate could get together to play since they're so close in age! Give him a big ole kiss from us!
Love,
The Youngs
so glad to hear caleb is doing well and playing a lot i hope you all are doing well and staying strong god bless your family and continued prayers always
love alana
Hi Sarah,
It's so wonderful to hear you say he is playing!! What a great sight for you...Thanks for the update--Have fun playing with the little guy, you all so deserve the smiles!!
Love and prayers,
Becky and Bobby D.
Sarah, Brian and family,
Caleb looks wonderful! It's good to hear that he is doing well. Keep up the good work little guy! You all continue to be in my thoughts and prayers.
Much love,
Amanda G. (CHP)
Hello Caleb I am just stopping by to say hello and I hope everything is going well.
Hugs and kisses,
Crystal and Eva
Sending love and prayers to you all.
Robbie, Drew & O
i am sorry i have been out of touch, we lost everything we own and our home in the san diego wildfires.
i am so happy to hear of calebs playing, i picture him happy.
christie and fam
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