First I want to say thank you for all of the thoughtful emails, phone calls, and prayers.
Caleb is still in the PICU in critical condition. He still has about one or two 'unstable' times a day. We are hoping that these are lessening in degree though. He is starting to get rid of his extra fluid by urinating, which is great as he is VERY swollen. He pretty much was reaching the point that he couldn't hold any extra fluid and they were worried this may cause problems for his internal organs. He still has times when his Acid levels and Carbon Dioxide levels aren't within normal range. We are hoping that once he gets rid of some of this fluid that these gases will stay within the normal range. It is a very nervewracking waiting game.
We continue to pray that Caleb continues to make baby steps in the right direction. We pray he can continue to get rid of this fluid and we pray that his gases can start STAYING within normal range.
God Bless Caleb!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
25 comments:
Just wanted to let you know that we are thinking of you.
Whew, Caleb, we'll take those baby steps! We just got home from Children's (a helmet adjustment) and i took the laptop to check on Caleb there.Mike told me, "no news is good news" and he was right!! Yeah!!
I am so glad to hear things are going in the right direction. We are praying for Caleb and the rest of you ALL the time.
Thank you so much for taking precious time to update us.
Kiss his head for us...
Love,
Corrie
That's very good to hear Sarah...even though there's lots going on here, you all are very much in our thoughts and prayers. Mom is standing behind me telling me to tell you hi and she's thinking of you. We love you guys! Stay strong Caleb...you are an amazing boy!!
God Bless & Lotsa Love...
Aunt Jess
I have been checking on you all day and added you to Eva's site asking for more prayers. Keep taking those baby steps. You are in our thoughts and prayers sweetheart!!
Crystal and Eva
I made this for you and the family I have it posted on Eva's site with an update on Caleb, I hope you enjoy it and you can post it on Calebs blog also....
http://www.onetruemedia.com/shared?p=2bd0f00077bfef3287394f&skin_id=1010&utm_source=otm&utm_medium=text_url
Caleb - Keep fighting little man....
Bri & Sarah - I think of you all often - saying lots of prayers for Caleb's health and some peace in your hearts....
We're here if you need anything!
Lots of love always to you all,
Gina, Rob and Sophia Bradley
Eva - the slideshow you made is amazing...What emotional songs and great photo choices!
Caleb,
Each morning on my way to the daycare, I say prayers with my 2 boys. We just want you to know that over the past couple of days you have definitely been prayed over. Keep hangin in there little guy. You can do it!
Just want to let you know that even though he's not here at Children's anymore, we are all still thinking about him. You also know that I'm continuing to pray for Caleb and for your family (and so is an entire church in Cranberry!). He'll fight through this.
Kishore Vellody
I come in here 3 times a day to check on you sweetie I just wanted you to know we are still praying and thinking about you!!
Crystal and Eva
www.babysites.com/sites/crystalm1476/
Hello Caleb,
We're hoping and praying that you're still taking those baby steps. We too check on you all the time. Praying for you all the time as well.
Love you all...
Corrie
hey sarah
just wanted to let you know i've thinking of you all everyday and praying for calab, you and brian. calab continue to fight and stay strong sarah. god bless all of you and the doctors and staff
love alana
We are still here and still praying for Caleb.
Love and hugs,
Crystal and Eva
Checking in on you all the time...please let us know how sweet Caleb is doing. We are worried about him, but hoping that no news is good news.
Love, Amy and Max
Gram Byrum
Caleb is an incredible fighter and truly is in God's hands. I watch him with Sarah and Brian and I know that all will be well. We all must keep our faith strong and pray often. Don't forget that there are so many children in need of our prayers...just read the comments to this blog.
PS A special hello to all the staff at Children's Hospital. You are a truly phenomeinal (sp)group of peope. Tell Gramma Donna I said hi. My love to Dr. Frankis-Kakis (SP), Dr. McPeak and to the marvelous Dr. Vellody.
Sarah- I found Caleb's site in a very round about way. I spent two hours reading every word to follow his progress.I shared it with all the girls in the office and they now have it bookmarked and check daily for updates. Please know that you all are in our prayers. Have your mom call me if there is anything we can do here to help you. Stay strong. Keep fighting Caleb. God Bless.
Hi Caleb,
You are still in our thoughts and prayers.
Hugs,
Sarah, Jeremy, and Evan
Caleb, Brian, Sarah, and family,
Each and every one of you have been in my thoughts and prayers. I'm glad Caleb has been making small steps towards getting better. He is such a fighter and has a wonderful family to help get through this!
love,
Amanda
Just wanted you to know I am still thinking about all of you and I hope he has continued with his baby steps!!
Hugs,
Crystal and Eva
I'm glad to hear that the baby steps Caleb's making are in a good direction. Caleb is in my thoughts and prayers as are you and Brian and your entire family for your amazing strength through everything.
Love you guys, Niki
Thinking about you and hoping for an update soon.
Jenn
Sooooo glad to finally read all of the updates. I haven't been able to access the blog for a while due to my own medical situation. Sarah, you do such a great job explaining everything so lugheads like me can understand. Hugs, kisses, love and prayers to you all.
Robbie, Drew & O
We are all praying for you up here in Pittsburgh. We miss Caleb and all of his wonderful family. Take good care and give him a hug from all of us.
We love you Caleb and pray you are still taking steps toward getting better! We hope to hear how you are doing soon...
Love,
Corrie
Love you guys so much! Thoughts and prayers always! xoxoxo's angie
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