Thursday, February 22, 2007
After second part of Duke Conference Call
Well the second part of the Duke Conference Call happened yesterday. We reviewed the consent papers and understand all the procedures, medicines, etc. that will be used. The papers will actually be signed once Caleb, my mom, and I arrive at Duke.
Unfortunately, Caleb's 4th central line worked it's way out yesterday. Therefore, they put another line, broviac, in lastnight that is a deeper and hopefully a more permanent line. This line allows the tissues to grow around the line to hold the line in better. This is also the line Dr. Markert wanted for when he is sent to Duke. Now, lets just pray that there are no line infections. He was uncomfortable lastnight and very dehydrated because he did not have any IV for several hours before the line placement, as he has no veins left for even a temporary peripheral line. So he had many boluses (larger quick amounts) of fluid lastnight to rehydrate him. In addition, he was given Tylenol and Dilaudid to help with the pain.
This morning he is still thirsty but needs lasix so he does not have fluid overload on his heart. In regards to his heart his hemoglobin levels have to be a little higher than normal to prevent his little heart from working a little too hard. He has already had two transfusions and they are ordering one for today. The good news is that Brian and I are a match to Caleb's blood type so we can donate. However, since he has the immune deficiency there are many viruses that people can carry that pose no risk to people with good immune systems. So the blood he gets is radiated and checked and double checked. There is one virus that 70% of the population carries that cannot be removed by radiation so all donated blood is checked for this virus, CMV. This virus can also pose risk at the success of the transplant so the blood he gets is very thoroughly examined.
These are the only updates I have at this time. As soon as I get more I will post them.