Caleb Paul Hlebiczki: 2/8/07

Thursday, February 08, 2007

2/8/07

Okay all..first off the older website is on http://caleb-hlebiczki.blogspot.com/. I am hoping to join the two together on this website soon.

Great news!!!! Thanks to everyone's prayers and well-wishes we are going to DUKE!!!! We have a conference call with the docs here and the docs at Duke tomorrow. We should find out more details of what to expect and when we may be going. As soon as I have any more details I will update the blog.

Also, I have pics just need to download them to the computer as soon as I can I will download and put them on the blog.

THANKS EVERYONE FOR THE PRAYERS!!!

3 comments:

Becky said...: Dear Sarah and Brian,
We have tears of joy for the great news about Duke!!As always, we will continue prays for your family. Thanks for the update and new pictures--what an adorable little guy! Please let us know if there is anything at all we can do-love you guys! Becky and Bobby Di.; 12:41 AM
Unknown said...: hugs to u and ur fam ellen a charger who found their way through amy and mighty max lol; 2:57 AM
Crystal M. said...: Still sending the thoughts and prayers your way!!
Crystal and Eva
www.babysites.com/sites/crystalm1476/; 8:50 AM

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.