Caleb Paul Hlebiczki: Warm Wishes

Tuesday, December 09, 2014

Warm Wishes

Good Morning Team Caleb,

I just wanted to post a small update. Things are going well (knock on wood-those who know me personally know I literally do knock now).

I wanted to share a photo with you.

We wanted to wish you and years a very Merry Christmas! We chose to stop sending out Christmas cards a couple years ago and donate what money we would spend on cards to the Children's Hospital of Pittsburgh and the Ronald McDonald house. The Christmas cards are starting to be mailed and I wanted to send ours via the internet :) So Merry Christmas Team Caleb. We love you all!

God Bless you all!!

God Bless Caleb and Camryn!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.