Caleb was on the news

Good Morning Team Caleb.

Yep you read that right.   Thanks to a friend who reached out to the local news and explained how they needed to do a follow-up on sweet Caleb the news did in fact come to our house yesterday. 

They did a story on Caleb years ago, when we brought him home after his two year straight hospital stay.  So a friend of ours (thanks Kathleen) reached out to the local news again and suggested they should do another story on Caleb.  We were honored that she had reached out to the news like that for him.

So I wanted to share the story.  It was great.  I am so proud of our litle boy. 

http://www.wtrf.com/story/27682664/child-with-rare-disorders-spending-christmas-at-home-with-his-family

Enjoy!!

God Bless you all!!

God Bless Caleb and Camryn!!

Clinic Time

That time of year has come.. to schedule clinic appointments.  With all the docs Caleb sees it takes us two full days to see all his docs in clinic.  We were fortunate to be able to move ENT to a local doctor who is not intimidated by Caleb and his CHARGE syndrome.  Caleb did great and I am so happy we switched to this local doctor.  Caleb does need new tubes so he will have that done in January at our local hospital.  Every procedure he has had prior (50+) have either been at Children's or Duke so this is a new territory for us.  I will post the surgery date when we have it. 

Also, I found an old news story they did on Caleb on CD however, I can't get it to upload to the blog, as soon as I can figure it out I will post it.

We went to Polar Express this past weekend as well.  I will upload those pictures tomorrow.  I was thinking about while driving for
work today and thought I would share.

Have a great evening everyone.

God Bless you all!!

God Bless Caleb and Camryn!!

All Systems are a GO

Well Team Caleb it's official!

The Make-A-Wish trip has been booked! 

We are very excited!!  Details to come soon.  Stay tuned!

God Bless you all!!

God Bless Caleb and Camryn!!

Warm Wishes

Good Morning Team Caleb,

I just wanted to post a small update.  Things are going well (knock on wood-those who know me personally know I literally do knock now). 

I wanted to share a photo with you. 

We wanted to wish you and years a very Merry Christmas!  We chose to stop sending out Christmas cards a couple years ago and donate what money we would spend on cards to the Children's Hospital of Pittsburgh and the Ronald McDonald house.  The Christmas cards are starting to be mailed and I wanted to send ours via the internet :)  So Merry Christmas Team Caleb.  We love you all!

God Bless you all!!

God Bless Caleb and Camryn!!

Happy Monday and Some Kisses to Heaven For Caleb's Guardian Angel

Happy Monday Team Caleb,

We have had a busy couple weeks.  Two kiddos with pneumonia like illness made for some very hectic time and a low-key Thanksgiving.  I hope you all had a fabulous Thanksgiving.

Since Caleb's surgeries in July, we have been trying to let his hair grow.  We have typically kept it short; but the last scar was so big due to them re-opening him so much, that his hair was not growing back well.  Due to those surgeries and the past brain surgeries he has had, he has many scars on his little head which can make cutting his hair difficult due to hos his hair lays now.  So while we were shopping yesterday at our local mall we stopped in at one of the mall salons and got his hair cut.  He did amazing.  He sat still and was so proud of himself.  Here are a couple of hair cut pics. 

 

 

Camryn's hair cut is later this month with my stylist, Jamie, and of course I will post pictures of that too.  She was excited for her upcoming hair cut after seeing her big brother get his hair cut. 

 

Then after that it was off to send our lists off to Santa.  I love the whole believe meter and the donations that come from it for every letter send to Santa. 

 

The kids did awesome.  They are too cute. 

I also just wanted to say today I am sending kisses and love to heaven.  We met an amazing young lady and her mom while we were at Duke with Caleb for his transplant.  The became very close friends of the family.  Samantha Welch fought cancer valiantly.  Shortly after our return to Pittsburgh Children's with Caleb from Duke, Sam passed away on December 1st.  We, and Sam's mom Faith, believe Sam is one of Caleb's guardian angels.  We love you Sam and miss you so much!  We love you to Faith! 

Have a great week Team Caleb. 

God Bless you all!!

God Bless Caleb and Camryn!!