Hello all,
Well Caleb had a rough weekend. He woke up early Saturday morning and wasn't feeling well. We think he was having some constipation issues, which in turn for kids with shunts can be even more uncomfortable as that can cause headaches and pressure as the fluid from his brain has nowhere to drain. We were told a while back that some kids with shunts, who get constipated, can experience intercranial pressure and headaches and we are wondering if this is what ocassionally happens to Caleb when he has his GI issues. Poor kid was pretty miserable. He did wake up Sunday a much happier kid, thank goodness.
I will be taking Caleb after school today to get blood work done to check his levels for his new dose for his Thyroid Disease. Please send him good vibes that it is a quick one stick test. Last time, was not and I hope this time goes a lot smoother. Thanks!
God Bless you all!!
God bless Caleb and Camryn!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
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