I just had to post this picture and share. Caleb drew this yesterday and said 'fish'! Bri and I were so proud of him. Not only did he draw but he REALLY drew something. Another big step!
Way to go Caleb!
God Bless you all!!
God Bless Caleb and Camryn!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
Thursday, March 15, 2012
Tuesday, March 13, 2012
He Melts my Heart
So I guess I should first start of by saying that I will be re-entering the working world by the end of this month. I need to go back to work to help pay the mound of medical bills that we have. It is not ideally what I want to do, but it is what I have to do for my family. I hope Caleb does well with this change. I have not been getting a lot of sleep as I stay up worrying that this is going to effect him negatively. I hope and pray that me going back to work will not be hard for him or Camryn.
As I am prepping myself to return to work, I am getting very emotional about things that I will miss while at work. One of which, is taking Caleb to the bus stop every day. Today, I took him to the bus stop early, since it was so nice out. He, Camryn, and I played while we waited at the bus stop. They are such good kids. Every day after Caleb gets on the bus, Camryn and I stand and wave to him, blow kisses, and sign 'I love you' while the aid buckles him in. Caleb had another great moment today as when I waved, he waved back. I just wanted to start bawling. He makes me so so proud! That little boy has more fight in him than ANYONE I have ever met. He is simply amazing. Yes, he has delays, but heck, who wouldn't after all he has been through. I am so proud of what obstacles he has overcome and I know many are ahead. I will help you buddy overcome them. Even though mommy has to work, I will continue to help! I love you and am so very proud of you. Thank you for the wave today, it was like you knew I needed that! I love you, your sister, and daddy with all my heart!
God Bless you all!!
God Bless Caleb and Camryn!!
As I am prepping myself to return to work, I am getting very emotional about things that I will miss while at work. One of which, is taking Caleb to the bus stop every day. Today, I took him to the bus stop early, since it was so nice out. He, Camryn, and I played while we waited at the bus stop. They are such good kids. Every day after Caleb gets on the bus, Camryn and I stand and wave to him, blow kisses, and sign 'I love you' while the aid buckles him in. Caleb had another great moment today as when I waved, he waved back. I just wanted to start bawling. He makes me so so proud! That little boy has more fight in him than ANYONE I have ever met. He is simply amazing. Yes, he has delays, but heck, who wouldn't after all he has been through. I am so proud of what obstacles he has overcome and I know many are ahead. I will help you buddy overcome them. Even though mommy has to work, I will continue to help! I love you and am so very proud of you. Thank you for the wave today, it was like you knew I needed that! I love you, your sister, and daddy with all my heart!
God Bless you all!!
God Bless Caleb and Camryn!!
Thursday, March 08, 2012
Another Great Moment
There are days when things I taught Caleb days or even months ago, just start snapping in that little mind of his. Today, he picked up the magna doodle and began to draw circles, then looked at me and signed and said 'caterpillar'. It was exactly how I have showed him, starting many months ago, to draw a caterpillar. I calmly (as if you get excited he will get upset and stop-sensory thing) said 'yes caterpillar' and was screaming inside. He smiled so big. I then said 'where are the caterpillar's eyes?' He then drew them and did the same for the caterpillars mouth and nose when asked. I was so happy! ahhhhh. What a moment. I am still smiling. So proud of him.
God Bless you all!!
God Bless Caleb and Camryn!!
God Bless you all!!
God Bless Caleb and Camryn!!
Trying a Cup
This past weekend I tried to start teaching Caleb how to drink from a cup. It didn't go really well. BUT this morning he grabbed my hand and took me to the kitchen and pointed to a cupboard. I opened it up and he pointed to a cup. Then he said 'milk'. I put milk in the cup and we have been working on him drinking from a cup. He seems excited about it, but it seems to be a bit difficult for him! I hope he can grasp the concept! Way to go little man.
God Bless you all!!
God Bless Caleb and Camryn!!
God Bless you all!!
God Bless Caleb and Camryn!!
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