Caleb Paul Hlebiczki: Ahhh Music to My Ears

Monday, February 27, 2012

Ahhh Music to My Ears

Hi all, I just wanted to post something great that just happened. So Caleb does know a lot of signs and words. One of which is momma. But whenever he wants me he always says 'hi', even if I am not looking, to get my attention. Just five minutes ago, I was working on some of my stuff for 31 on the computer and I heard him yelling 'momma, momma' from the other room. I looked in the room and he was saying momma and signing it, and he wanted me! He has never done this! I was so happy that he understands this is the way to get my attention. I hope he continues to do so! It was so great to hear my little boy yell for his momma. WAY TO GO CALEB!!

God Bless you all!!

God Bless Caleb and Camryn!!

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Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.