Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"


Thursday, March 05, 2009

That's My Boy!

So Caleb has begun to understand what signing is. He has really started to notice that we are signing to him and that is a pathway for communication for him to 'talk' to us. It is so amazing how he has begun to pick up on a sign so quickly and know what it means. I literally taught him the sign for a couple colors lastnight and he literally within minutes was signing it and trying to verbally say it to me. He is so smart! I know every parent says that...but wow what amazing strength my little boy has. He has also tried to verbally communicate with us too. It is such a great feeling to now to be able to somewhat communicate with him. Wow, what a feeling. He has really started to look at our hands wanting us to sign as well as verbally over-enunciate the words to him. I know, as always, that their will be times at which he may regress and may not want to communicate and do signing or be less verbal but he can do it. He is one smart boy!
Another new thing that Caleb does is when it is feeding time and I am getting ready to hook his feeding tube up to his Mic-key button, he points to his Mic-key button in his belly to show me where to attach his feeding tube and pulls up his shirt for me so I can attach it. How awesome is that?!?
He still does not want to eat by mouth, but we work at it everyday. You can tell that he is interested as he does salivate when food is placed in front of him, but the poor thing is so scared of the concept. He will get it, I know he will! It may not be tomorrow or next week, but he will do it on his own time as Caleb always does!
I have also started to begin the paperwork for Make-A-Wish for Caleb and contacted his doctors to ask them to write letters on his behalf. I was literally brought to tears when Caleb's doctors responded and what they said. We are truly blessed to have some of the finest doctors in our lives. We love you all. So the question is...do we have a wish? ....NO!... It is so hard to make a wish for a lil' one who is not completely verbal and cannot tell you what he wants, but you know if anyone deserves nothing but the best he does. We also have to keep in mind of the immunosuppression issues...so we are thinking. We are open to any suggestions that any of you may have, please feel free to suggest anything by posting a comment.
I am sorry again for the delay in posts...please forgive me! Thanks!

God Bless you all!!

God Bless Caleb!!

4 comments:

Eva Nichole said...

That is wonderful Caleb!!! Keep up the awesome work, we love you, you smart little man!
Hugs,
Crystal and Eva

Jenny said...

that is GREAT sarah!!! he is progressing so well - i'm sure the food thing will come - all you can do is keep working w/him!!!

good luck on the make-a-wish!!!

as you know - Caleb, as well as you and brian deserve it!!!

have a great weekend!!

Jenny

The Claytons said...

Great Job Caleb!! You are so smart!! Keep it up - you will never cease to amaze people - that is what I say about Christopher as well as all of our little friends on our blog site! Hope you have a great weekend :O)

Kim

Chris B said...

I am so in awe of all of this!! What a precious gift for all of us - to remind us that despite all of the difficult news every day, there is joy on Valley View in Wheeling, WV!! My very best love to all of you!! XOXO Chris