Hi all,
Sorry for the delay with the update. I have been dealing with some medical issues of my own.
So as far as the clinic updates here we go :)
The first doctor we saw was Opthamology. His eyes have not gotten any worse and neither has his lazy eye, which is awesome news. Also, we were concerned that Caleb has dry eye after they opened up his puncta in surgery on New Year's Eve because he was blinking more and rubbing his eyes. Well., she did a test and his eyes are not dry. Thank goodness, I was scared that opening up his puncta had backfired but that wasn't the case..phew. She told us to get over the counter drops for allergies to see if that helps him. Follow up in 6 months.
Next stop was Endocrinology. Caleb's thyroid levels look great, but the docs were a bit concerned that Caleb has not grown much height wise and has gained no weight. They want us to really increase his caloric intake and they also perscribed a med to make him more hungry. We aren't fans of the med and are really trying to watch him and how much he eats. If his eating drops off, then we will start the med, but right now we are adding carnation instant breakfast to his milk and really trying to get him to eat more and better on his own. If he doesn't gain weight the docs may once again check his growth hormone next visit, in six months, to see if Caleb needs growth hormone injection. Brian and I aren't fans of the growth hormone and we really oppose the use of it. Right now, we are just really hoping Caleb puts on some weight in the next couple of months.
Last stop was Allergy and Immunology and I don't mean to sound like a pessimist. But for some reason our appointment with them the last few times was with a new fellow and Caleb's immune issues are way over her head. She was suggesting treatment that we KNOW are not applicable to Caleb. I will be calling the head of the department to suggest Caleb be seen by him again since he is knowledgeable with Caleb's immune issues.
Well that is it for now. I will keep you all posted. OH WAIT..have to say some big news for Caleb.
CALEB CAN READ!! We were working on some words with Caleb sent home from his teacher and he was a bit bored at how I was reviewing his vocabulary with him. So I asked him to find the words in the list, to test him to see if he can read AND MY BOY CAN READ! He found every work we asked him and Brian and I were ecstatic. So ecstatic. He also said two full sentences to us lastnight. He recited two sentences from 'no more monkeys jumping on the bed' we were so happy. His teachers and school are great with him. We are so happy with his progress this year.
Well for real, that is it for now, thanks for checking in!
God Bless you all!!
God Bless Caleb and Camryn!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
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