Sorry for the delay in posts. Caleb and I finally got rid of the nasty cold we had. He seemed to do a lot better with it than I did. That is definitely an encouraging sign in regards to his immune system. Of course he did need help with antibiotics, but he fought of the cold. I am just praying we make it through the rest of this nasty flu seasons without anymore bugs.
A couple of updates:
Caleb had a couple days where out of nowhere he was drinking! One day he drank up to six ounces of milk! He never even drank when he was born so this was awesome to see. Unfortunately, the last two days he has had no interest in drinking so we are hoping he will get the urge to drink again today. I am going to work with him after writing this post, so we will see how it goes. Fingers crossed!
Brian and I took Caleb out with us about a week ago and had so much fun. We went to the store and then...wait for it....to Applebees. WOW, I can't even express how awesome it was to be out as a family at a restaurant. We wiped down the highchair and table and asked the hostess to seat us as far away from others as possible. It was so neat to do this. I think Bri and I smiled all the way through dinner. A cute little story while we were at Applebees: when we first sat down Caleb got a kid menu (which was neat as our kiddo could eat something off the menu) and he kept saying applesauce and signing it and we figured out he saw the apple on the kids menu. Cute right?!? He also met a friend, a lady, who he waved to and flirted with all dinner. Reminded me of when he used to flirt with all the nurses, his girlfriends, when he was in the hospital. We also go to see a a couple of friends while we were out. It was so nice seeing you all and thanks for understanding and not getting too close to Caleb! We love you guys!
Caleb has been mimicking Bri and I more, which is fun. We try to get him to say all sorts of things. Our favorite so far is 'butterfly' he sounds so darn cute when he says it! A lot of this mimicking is done without his hearing aid too so that is amazing in itself also. In regards to his hearing aid, we got it fixed about two weeks ago. We tried a local audiologist which we loved, Tri-state Audiology, and she was great! Caleb wore his hearing aid the first day after getting it repaired but now we are having a lot of issues with trying to get him to keep it in. He has never done this. Have any other parents with kiddos with aids dealt with this? If so, what happened? Any feedback would be appreciated!
Well that is a good amount of updates for now, there are many more. I will update again soon so please stop back soon! Thanks for stopping by!
God Bless you all!!
God Bless Caleb!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
Tuesday, January 26, 2010
Friday, January 01, 2010
We had a great Christmas and New Year
So what is the meaning of Christmas...not the amount of present under the tree and how much money you spent...it is that your family and loved ones are around you. We were blessed to spend our second year in row AT HOME as a family for Christmas and New Year's. What a great day. Caleb didn't open his gifts as he wasn't sure about it but he was very intent when I or Brian unwrapped his presents. Thank you to all the Santas that sent Caleb gifts too. You all are too too kind, thank you so much! I have included some pics of a snowstorm that came a couple days before Christmas, Caleb opening his gifts, and Caleb looking/playing with the Steeler tree we got from my parents.
Unfortunately, a couple days after Christmas Caleb got very congested and we were not concerned as long as it didn't seem to bother him or get any worse. I, about two days after Caleb started getting congested, ran a fever and got very congested also. Well, this morning he woke up coughing or should I say barking like a dog or a seal. I walked into his room and he was sitting up in bed crying and coughing and trying to catch his breathe. Brian and I noticed his congestion had started moving lastnight and we were worried that maybe his congestion had moved to his chest. Our pediatrician is out of the office for the holiday so we decided to take him to MedExpress as we love all the docs there. They were great. We were so excited when we walked in and saw Dr. Burkland! He is not only an awesome doctor but a family friend! He said that both Caleb's and my symptoms are due to a nasty bug circulating around that is very similar to the flu. He listened to Caleb's lungs and said they sounded clear! Thank goodness. So they gave his a strong steroid via his g-tube that will hopefully help him with his cough and will help him get rid of his cold. I will post soon with updates on his cold.
Also, on a side note, some anonymous person is leaving unwanted comments on this blog. I now will get notifications when someone leaves a comment then if it is not that person I will post. So please don't be alarmed if you don't see your comment right away and PLEASE continue to leave you comments.
Thanks for checking in!!
God Bless you all!!
God Bless Caleb!!
Unfortunately, a couple days after Christmas Caleb got very congested and we were not concerned as long as it didn't seem to bother him or get any worse. I, about two days after Caleb started getting congested, ran a fever and got very congested also. Well, this morning he woke up coughing or should I say barking like a dog or a seal. I walked into his room and he was sitting up in bed crying and coughing and trying to catch his breathe. Brian and I noticed his congestion had started moving lastnight and we were worried that maybe his congestion had moved to his chest. Our pediatrician is out of the office for the holiday so we decided to take him to MedExpress as we love all the docs there. They were great. We were so excited when we walked in and saw Dr. Burkland! He is not only an awesome doctor but a family friend! He said that both Caleb's and my symptoms are due to a nasty bug circulating around that is very similar to the flu. He listened to Caleb's lungs and said they sounded clear! Thank goodness. So they gave his a strong steroid via his g-tube that will hopefully help him with his cough and will help him get rid of his cold. I will post soon with updates on his cold.
Also, on a side note, some anonymous person is leaving unwanted comments on this blog. I now will get notifications when someone leaves a comment then if it is not that person I will post. So please don't be alarmed if you don't see your comment right away and PLEASE continue to leave you comments.
Thanks for checking in!!
God Bless you all!!
God Bless Caleb!!
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