Well...Caleb's bloodwork results came back today to check his response to the second Tetanus shot to see if his immune system is working. Unfortunately, there was a low response. Brian and I are both upset and feel like the wind has been taken out of our sails. I honestly think this is one of the 'lower' days we have had in awhile! So needless to say it has been a very emotional day.
I was able to ask Dr. Markert a couple questions today: 1. What next? and 2. Do we need to start worrying that Caleb's immune system might not ever respond?
First, there has been enough of a time lapse per the transplant protocol that Caleb can get another Tetanus shot. So thanks to Ellen (Caleb's AI fellow in Pittsburgh) who got the shot ready, my Dad (who picked up the shot in Pittsburgh and brought it to our house), and Angeline (Caleb's nurse who stayed over to administer it); Caleb got his 3rd Tetanus shot today. Thank you all for making that happen on such short notice. So hopefully the third time is a charm. Second, she is optimistic that since he was able to get off his IV nutrition that maybe that means his immune system is trying to work-but she cannot provide any guarantees. She also said she is not any more worried about his lack of response, however she says she will always worry, as she does with all her kids, until there is a response.
So please I am asking everyone to pray hard for Caleb and his Immune System and that he does get a response and that his Immune System starts working!
God Bless Caleb!!
Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!
Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"
2 comments:
Sorry to hear the news wasn't what you had hoped...prayers are on the way!!
Love-
Chris XOXO
I will keep Caleb and you all in my thoughts and prayer that everything starts looking up soon.
Hugs,
Crystal and Eva
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