Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us"

Tuesday, September 02, 2008

A Walk a Little Further from Home

Brian, Caleb, and I were suffering from extreme cabin fever...so we did it!!

We left the house and went further than a block from our house.
We went to Oglebay for our nightly walk. We were all so excited on the ride up to the park.

Once we got there, we got out, straightened out his IV and feeding tube and we were on our way.

I have to admit, I got choked up. So awesome to do something like that with Caleb. He go to see deer, huge trees, the big fountain they have in the lake. It was so nice to be in a different area. There park was not crowded at all. There were only one or two other people on the path so we were able to pull the stroller over to the side and keep him at a safe distance from other people. We liked it so much we went back two days later. We had a ball.

I hope you enjoy the pictures we took. I know a couple look a lot alike, but we were so excited we had to take pictures!!

A couple side notes:
  • I drew bloodwork last Tuesday to see how Caleb reacted to his Tetanus shot. The results can't come back soon enough. It may be up to a month before we hear anything. So please pray hard that his immune system reacted well.
  • Caleb is now up to (ARE YOU READY?!?!) 80 mls/hour continuously on his gut feeds that are being given through his g-tube (feeding tube). If all goes as planned (again please pray hard for this too) Caleb would have three more increases on his feeds (and 3 more weans on his TPN -IV nutrition respectively) and then we would try to see how he does without the IV nutrition. This 'big switch' could happen at the earliest on the 8th. So please pray hard that he gets there with no problems and that he tolerates it well as the last time we tried this Caleb was life-flighted back to Children's, went into cardiac arrest, and was in the PICU for awhile.
  • The therapists, Developmental and Speech, came and did there initial evaluations. No surprise that Caleb has a huge sensory issue that will need a lot of therapy. The speech therapist told us to hold off on trying to feed him by mouth as she believes she has to deal with his sensory issues all over before even trying to put anything in his mouth as this is sensory related also. We are going to get a Physical Therapist and an Occupational Therapist to work with him also. As they can work with him also on his sensory issues as well as some of his delays that were caused by being in the hospital for a year and a half. They are great girls and we are really excited for Caleb at how this therapy could help him.
  • As far as nursing and insurance - as many have been asking. The situation is NO better. I appreciate all the emails and calls and I am definitely heading everyone's advice. I just don't want this issues to overshadow Caleb's tough work lately and I want to keep this post a positive one.

I also have a video montage ready, but I had to show off the pics of Caleb at the park. What a great milestone for the little man.

God Bless you all!! Thank you for checking in on Caleb!!

God Bless Caleb!!


Anonymous said...

AWESOME!!! I'm so jealous...I miss Oglebay! :) :) You guys look amazing and I'm so glad you're getting out of the house more!

Love you & miss you!!!!

melissab said...

I am so happy for you guys! I love the pics! Keep up the good work little man. <3 Melissa

Jen Straub said...

Thank the Lord for his many blessings!!! How beautiful to get some shots, OUTSIDE with your BEAUTIFUL boy (and his super Hot Mama!!!). Love you guys SOOOOOOOO much and can't wait for the day we are chasing Haleigh and Caleb on that trail!!! Won't be long now!!! We are praying HARD!!! God Bless and Kisses to your little man!

All our Love-

Aunt Jen and Crew!

Chris B said...

I literally got goose bumps when I opened the blog and saw those wonderful pictures!!! What joy it brings to see the smiles as you are outside and at wonderful Oglebay. I believe in the most powerful way that only good things can come now...and that when a "bump" does crop up, you all are in a perfect position to deal with it. Can't wait to hear about the test results and other progress. You know how much you are loved!!


ellen charge said...

wow wat a great time it must of been and UPDATE on the tetnas thing the sec u get it and when hes got no iv and tpn does that mean the line can come otu yay

Eva Nichole said...

Oh so wonderful!! I wish we could go to the park with you all, maybe one day we will.
Crystal and Eva

Becky said...

Great to see you guys walking in the park!! I lost your website when my computer crashed months ago, and finally got it again from Brian. I missed seeing his progress, but am so very today to be back on - and always have kept you guys in my prayers. Can't wait to see more photos..
Love, Becky and Bobby D.

Jenny said...

Those are great pics!! I am so glad you got to enjoy Oglebay w/him and hope many more walks are to come!!! :)

Take Care!!!

Amanda Perdue Hamilton said...


Just logged onto the website. I haven't been on in a while and I am so glad to see the pics of you all outside enjoying the weather as well as the updates. Caleb has become such a big boy and is continuing to bless those around him. You and your family are always in my thoughts and prayers. Good luck on the nursing issues, my sister is experiencing the same thing with my niece right now. I am glad to see you all making such big steps that may seem small to others, but are definitely huge leaps. Take care.